| Cystinosis Research Network (CRN) Scientific Symposium: Advancing the Future of Cystinosis Care Date: November 13, 2026 8:00am – 6:00pm ET One day, in-person event Weber’s Hotel 3050 Jackson Ave, Ann Arbor, MI 48103 Registration and details at https://cystinosis.org/event/2026symposium/ Questions? Email [email protected] The CRN Scientific Symposium is a one-day, peer-to-peer meeting bringing together physicians, clinicians, researchers, and scientists to explore emerging developments in cystinosis and lysosomal storage disorders — from newborn screening and novel treatment approaches to gene, mRNA, and cell-based therapies. Sessions will also examine advances across the broader lysosomal storage disorder landscape, fostering exchange and collaboration among colleagues advancing cystinosis research and treatment. Chaired by Elizabeth Ames, MD, PhD who serves as Clinical Assistant Professor at the University of Michigan and is Co-Director at the Michigan NORD Rare Disease Center of Excellence. CRN is a NORD member organization |
Please complete this form to access the requested resource.
