Loading Events

« All Events

Moebius Syndrome Awareness Day

January 24, 2031 @ 8:00 am - 5:00 pm EST
Moebius Syndrome Awareness Day is on January 24!

Moebius syndrome is a rare, neurological condition that impacts 2 to 20 per million births. The Moebius Syndrome Foundation invites everyone to learn more about Moebius syndrome and the resources offered by the Moebius Syndrome Foundation at www.moebiussyndrome.org.

It causes facial paralysis or weakness and can cause speech, feeding and respiratory difficulties, limb differences, and other symptoms. It is a congenital, non-progressive disorder that affects individuals from all walks of life. For over three decades, the Moebius Syndrome Foundation has been leading the way advocating for awareness, advocacy, creating educational resources, connecting people, providing support services, and funding critical research initiatives.

Get Involved

Help them celebrate this event all month long in January by submitting your stories and photos. Please email materials to them at: [email protected].

Our regional coordinators are hosting in-person events across the country! Celebrate by finding an event near you.

You can also participate and support Moebius Syndrome Awareness through social media by sharing your memories using the hashtags #MSAD2026 and #MoebiusSyndomeFoundation.

Learn more about Moebius syndrome.

Details