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Vermont Rare Disease Advisory Council Coalition Meeting

Tagged in: RDAC
Zoom
Virtual Event Virtual Event

EMPOWER CHANGE Your Voice Matters in Building a Rare Disease Advisory Council Join the coalition of rare disease patients, experts, and advocates like you to push lawmakers to create a Rare Disease Advisory Council (RDAC) in Vermont. Meet other rare disease community members in your state. Discuss the unique needs and challenges that the rare …

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Goodwin’s Annual Rare Disease Symposium 2025

Goodwin’s Life Sciences team invites you to save the date for its Annual Rare Disease Symposium in Boston on February 5, 2025 – the program will also be streamed remotely. Join us for an afternoon of engaging fireside chats, inspirational presentations, and networking with your peers in the rare disease community. This year’s program will include …

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TEST EVENT

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Washington University School of Medicine Rare Disease Day

Washington University School of Medicine has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world to celebrate Rare Disease Day®. Hosted on February 28, Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the …

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FDA-NIH Rare Disease Day

Rare Disease Day® takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. This year, the National Institutes of Health (NIH) National Center for Advancing Translational Sciences (NCATS) and the U.S. Food and Drug …

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CHOC & UCI Rare Disease Symposium & Family Conference

CHOC and UCI are excited to present the 4th Annual Rare Disease Symposium and Family Conference, uniting advocates, researchers, clinicians, students, and families. This event serves as a platform for sharing knowledge, research advancements, and personal stories related to rare diseases. This year’s conference will focus on the latest innovations in the diagnosis and treatment …

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Rare Disease Day 2025 at the University of Minnesota

Since 2008 the Center for Orphan Drug Research and the Stem Cell Institute at the University of Minnesota have co-sponsored a Rare Disease Day program in conjunction with the international Rare Disease Day. Our event is intended for both university and community attendees including patients, families, patient advocacy organizations, health care providers, health care organizations, …

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Boston Marathon (2025)

AK, India

Learn more at https://runningforrare.org/events/

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