Goodwin’s Life Sciences team invites you to save the date for its Annual Rare Disease Symposium in Boston on February 5, 2025 – the program will also be streamed remotely. Join us for an afternoon of engaging fireside chats, inspirational presentations, and networking with your peers in the rare disease community. This year’s program will include …
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Washington University School of Medicine has joined forces with over 25 million Americans living with a rare disease and health care advocates around the world to celebrate Rare Disease Day®. Hosted on February 28, Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the …
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Rare Disease Day® takes place worldwide, typically on or near the last day of February each year, to raise awareness among policymakers and the public about rare diseases and their impact on patients’ lives. This year, the National Institutes of Health (NIH) National Center for Advancing Translational Sciences (NCATS) and the U.S. Food and Drug …
CHOC and UCI are excited to present the 4th Annual Rare Disease Symposium and Family Conference, uniting advocates, researchers, clinicians, students, and families. This event serves as a platform for sharing knowledge, research advancements, and personal stories related to rare diseases. This year’s conference will focus on the latest innovations in the diagnosis and treatment …
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Since 2008 the Center for Orphan Drug Research and the Stem Cell Institute at the University of Minnesota have co-sponsored a Rare Disease Day program in conjunction with the international Rare Disease Day. Our event is intended for both university and community attendees including patients, families, patient advocacy organizations, health care providers, health care organizations, …
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Learn more at https://runningforrare.org/events/
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