Rare Cancer Coalition at AACR! April 17 – 22, San Diego, CA The Rare Cancer Coalition will have a booth at the American Association for Cancer Research (AACR) Annual Meeting, where we’ll be connecting with researchers, clinicians, and advocates to highlight the vital role of the rare cancer patient community. Stop by to learn more about our …
Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …
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The AIU Summit is a national educational and support conference bringing together patients, caregivers, and healthcare professionals to learn about adrenal insufficiency management, crisis prevention, and the latest treatment advances while building a supportive community. AIU is offering both virtual and in-person registration. It is taking place April 23-25th, 2026, at DoubleTree by Hilton Minneapolis …
Join the International Waldenstrom Macroglobulinemia Foundation on May 1–3, 2026, in Columbus, Ohio, for IWMF’s cornerstone educational event! The IWMF Ed Forum brings together patients, caregivers, healthcare professionals, and researchers for three days of learning, sharing, and meaningful connection at the Hilton Columbus Downtown. The U.S. Educational Forum offers in-depth, expert-led education on all aspects …
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Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk about topics such as adopting an anti-inflammatory diet and functional medicine. At the end of each meeting, they invite participants to join in a short …
Continue reading "Pericarditis Alliance Virtual Support Group Every 1st Saturday"
Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …
Continue reading "🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings"
Rare Cancer Coalition at ASCO! May 29 – June 2, Chicago, IL The Rare Cancer Coalition will have a booth in the Patient Advocacy Pavilion at the American Society of Clinical Oncology Annual Meeting, where we’ll be engaging with patients, caregivers, and oncology professionals to share resources and highlight the rare community. Visit us to …
Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk about topics such as adopting an anti-inflammatory diet and functional medicine. At the end of each meeting, they invite participants to join in a short …
Continue reading "Pericarditis Alliance Virtual Support Group Every 1st Saturday"
National PKU Alliance (NPKUA) supports an annual grant program to fund the most critical projects working to improve the lives of individuals with PKU. The 2026-2027 NPKUA Grant Program is now accepting proposals for funding for PKU research. Eligible applicants must have an advanced degree(s) and hold a position at an established clinical/academic/research institution. Investigators …
NORD member @United Mitochondrial Disease Foundation's Mitochondrial Medicine Conference 2026 -- June 17-20 in Orlando -- brings together families and global leaders, scientists, and clinicians for four days of cutting-edge research, emerging therapies, and meaningful collaboration with patients to accelerate progress toward a cure. Patients and families can connect with top specialists, join educational sessions …
Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …
Continue reading "🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings"
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