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IPPF @healourskin on June 23rd for a Patient Education Webinar on Corticosteroids for Pemphigus and Pemphigoid and How to Manage Side Effects

Join the IPPF @healourskin on June 23rd for a Patient Education Webinar on Corticosteroids for Pemphigus and Pemphigoid and How to Manage Side Effects with Dr. Rachel Lipman, MD, Dermatologist and Internist …

International Pemphigus and Pemphigoid Foundation Virtual Support Group: June 24th

Connect Virtually with Other Pemphigus and Pemphigoid Patients and Caregivers in the Southern California area on June 24th. Living with pemphigus or pemphigoid is hard enough, but when you feel …

2025 Cholangiocarcinoma Portland Symposium

2025 Cholangiocarcinoma Portland Symposium The 2025 Portland Cholangiocarcinoma Symposium will convene in Portland and draw together leading experts, researchers, healthcare professionals, patients, and advocates. This event promises to be a …

FOUNDATION FOR SARCOIDOSIS RESEARCH Global Virtual Summit June 28-29

United for Progress: A New Chapter in Sarcoidosis Join the FSR Global Virtual Summit | June 28–29 Learn the latest care Build global connections Get tools to thrive https://loom.ly/aLYtjh0 #FSR2025 …

rideATAXIA Hometown Boston – Sunday, June 29, 2025

rideATAXIA Hometown offers teammates the opportunity to ride individually or host local events for their community as part of the rideATAXIA Program Series. rideATAXIA Hometown Boston is proud to be …

2025 TSSUS National Turner Syndrome Conference

The 2025 TSSUS National Turner Syndrome Conference will be held in Portland, Oregon on July 18-19, 2025. This annual event is a program of the Turner Syndrome Society of the …

National Scleroderma Conference

As you may know, this year’s National Scleroderma Conference will be held in St. Louis, Missouri, from July 18-20, 2025. This year’s conference, with nearly 50 sessions, workshops, and networking …

🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings

Tagged in: Rare Cancer Coalition

Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …

Cure LBSL externally-led Patient-Focused Drug Development meeting on Aug. 1

Cure LBSL will host the LBSL externally-led Patient-Focused Drug Development meeting on Aug. 1 at the National Building Museum in Washington from 10 a.m. to 3 p.m. This hybrid event …

🌟 2025 LFSA Youth & Young Adult Workshop

Tagged in: Rare Cancer Coalition

🌟 2025 LFSA Youth & Young Adult Workshop Dates: August 15–17, 2025Location: Boston, MAEligibility: Ages 13–25 with Li-Fraumeni Syndrome (LFS)Registration: Interest Form The LFSA Youth & Young Adult Workshop is …

Charcot-Marie-Tooth Association Patient & Research Summit September

The 2025 CMTA Patient & Research Summit will be held on Friday, September 5th – Sunday, September 7th at the Embassy Suites at Indianapolis Airport in Plainfield, Indiana: https://summit.cmtausa.org The …

🔬 DTRF International Research Workshop

🔬 DTRF International Research Workshop Date: Friday, September 12, 2025Location: Northwestern Medicine: Prentice Women’s Hospital, Chicago, ILDetails: Designed for researchers and medical professionals, this workshop presents the latest information on …

🧬 DTRF Annual Patient Meeting

Date: Saturday, September 13, 2025Location: Northwestern Medicine: Prentice Women’s Hospital, Chicago, ILDetails: Join us for the cornerstone of the Together We Will Weekend. This meeting features educational presentations by clinicians …

International Scientific Symposium 2025 | Toronto, Canada Pathways to Progress: A Decade of Insights and Innovations in EDS and HSD

In-person in Toronto, Canada, with virtual attendance options  Join us for the 2025 International Scientific Symposium, taking place from September 17-21, 2025 in Toronto, Canada—a hybrid event designed specifically for healthcare professionals. This symposium …