NORD Member Event

  1. Events
  2. NORD Member Event

Views Navigation

Event Views Navigation

Today

International Pemphigus and Pemphigoid Foundation Virtual Support Group: June 24th

Connect Virtually with Other Pemphigus and Pemphigoid Patients and Caregivers in the Southern California area on June 24th. Living with pemphigus or pemphigoid is hard enough, but when you feel …

2025 Cholangiocarcinoma Portland Symposium

2025 Cholangiocarcinoma Portland Symposium The 2025 Portland Cholangiocarcinoma Symposium will convene in Portland and draw together leading experts, researchers, healthcare professionals, patients, and advocates. This event promises to be a …

FOUNDATION FOR SARCOIDOSIS RESEARCH Global Virtual Summit June 28-29

United for Progress: A New Chapter in Sarcoidosis Join the FSR Global Virtual Summit | June 28–29 Learn the latest care Build global connections Get tools to thrive https://loom.ly/aLYtjh0 #FSR2025 …

rideATAXIA Hometown Boston – Sunday, June 29, 2025

rideATAXIA Hometown offers teammates the opportunity to ride individually or host local events for their community as part of the rideATAXIA Program Series. rideATAXIA Hometown Boston is proud to be …

Tri-State New York Virtual Support Group

Connect Virtually with other Pemphigus and Pemphigoid Patients and Caregivers in the Tri-State New York area on July 1st. Living with pemphigus or pemphigoid is hard enough, but when you …

IPPF South Florida Virtual Support Group Meeting

Connect Virtually with Other Pemphigus and Pemphigoid Patients and Caregivers in South Florida on July 13th. Living with pemphigus or pemphigoid is hard enough, but when you feel alone it …

2025 TSSUS National Turner Syndrome Conference

The 2025 TSSUS National Turner Syndrome Conference will be held in Portland, Oregon on July 18-19, 2025. This annual event is a program of the Turner Syndrome Society of the …

National Scleroderma Conference

As you may know, this year’s National Scleroderma Conference will be held in St. Louis, Missouri, from July 18-20, 2025. This year’s conference, with nearly 50 sessions, workshops, and networking …

🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings

Tagged in: Rare Cancer Coalition

Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …

Platelet Disorder Support Association (PDSA) 25th Annual ITP Conference

We’re More Than Our Platelet Counts—Let’s Talk Immune Thrombocytopenia Together! Join a community that speaks your language. The Platelet Disorder Support Association (PDSA) is hosting its 25th Annual ITP Conference …

Northern California IN-PERSON Support Group Meeting Saturday, July 26, 2025

Connect In Person with other Pemphigus and Pemphigoid Patients and Caregivers in the Northern California area on July 26th! Living with pemphigus or pemphigoid is hard enough, but when you …

Cure LBSL externally-led Patient-Focused Drug Development meeting on Aug. 1

Cure LBSL will host the LBSL externally-led Patient-Focused Drug Development meeting on Aug. 1 at the National Building Museum in Washington from 10 a.m. to 3 p.m. This hybrid event …

🌟 2025 LFSA Youth & Young Adult Workshop

Tagged in: Rare Cancer Coalition

🌟 2025 LFSA Youth & Young Adult Workshop Dates: August 15–17, 2025Location: Boston, MAEligibility: Ages 13–25 with Li-Fraumeni Syndrome (LFS)Registration: Interest Form The LFSA Youth & Young Adult Workshop is …

Charcot-Marie-Tooth Association Patient & Research Summit September

The 2025 CMTA Patient & Research Summit will be held on Friday, September 5th – Sunday, September 7th at the Embassy Suites at Indianapolis Airport in Plainfield, Indiana: https://summit.cmtausa.org The …

🔬 DTRF International Research Workshop

🔬 DTRF International Research Workshop Date: Friday, September 12, 2025Location: Northwestern Medicine: Prentice Women’s Hospital, Chicago, ILDetails: Designed for researchers and medical professionals, this workshop presents the latest information on …