Don't miss the CureDuchenne FUTURES National Conference is an annual event focused on bringing education, connection, and hope to individuals and families affected by Duchenne muscular dystrophy. May 22-25, San Antonio, TX. Register at https://www.cureduchenne.org/futures
Join IWMF to celebrate their 30th Annual Ed Forum for #WM patients and caregivers May 30-June 1. The IWMF Educational Forum is a pivotal gathering designed to educate and empower individuals affected by Waldenstrom's macroglobulinemia (WM). This forum brings together patients, caregivers, healthcare professionals, and researchers for a comprehensive exploration of WM-related topics. Attendees can …
🩺 2025 IWMF Educational Forum: Advancing Waldenström’s Macroglobulinemia Care Dates: May 30 – June 1, 2025Location: Sawgrass Marriott Golf Resort & Spa, Ponte Vedra Beach, FLRegistration: Register here Join the International Waldenström’s Macroglobulinemia Foundation (IWMF) for their premier educational event, bringing together patients, caregivers, clinicians, and researchers. Engage in sessions covering the latest research, treatment …
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Please join XLID98 Foundation on May 31, 2025 for their first conference for the XLID98 community. This virtual conference is meant as an opportunity for you to hear from medical professionals, therapists, and other parents on the research, challenges, and successes surrounding this genetic condition. Join virtually from 8:30 am Eastern Time until 4:30 pm …
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SDS PFDD Meeting EL-PFDD Meeting for Shwachman-Diamond Syndrome June 4 This meeting is an Externally-led Patient-Focused Drug Development meeting, which is a special type of meeting developed by the FDA to give FDA and other key stakeholders, including medical product developers (pharma/biotech companies), health care providers (doctors), researchers, and the general public, a unique and …
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🧪 MPN Pathways: Empowered Voices in Research – FDA 101 Webinar Date: Thursday, June 5, 2025Time: 5:00–6:00 PM CTFormat: Live via ZoomRegistration: Sign up herempnadvocacy.com+4Reddit+4The Patient Story+4 Join us for the next session in the MPN Pathways: Empowered Voices in Research series, focusing on the U.S. Food and Drug Administration (FDA). This webinar will provide …
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Join NORD's Rare Action Network in South Portland, ME on Friday, June 6 from 9am to 1pm for advocacy training, policy education, and more! This event is free to attend and breakfast + lunch will be provided. Click here to register.
"The 2025 FPA Conference is a two-day in-person event connecting the worldwide facial pain community with experts who diagnose and treat people affected by facial pain. We are thrilled to host our first in-person event in six years! Thanks to your support, we’re able to offer tickets for $295 each; the same pricing seen at …
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