Join Mission MSA for their final Path to a Cure event of 2026! On Sunday, November 8 at 9:00am PT, the MSA community will come together in San Diego, California to honor and uplift those living with multiple system atrophy. This event fosters unity, encouragement, and meaningful community while raising funds that support everything Mission …
Cystinosis Research Network (CRN) Scientific Symposium: Advancing the Future of Cystinosis Care Date: November 13, 2026 8:00am - 6:00pm ET One day, in-person event Weber's Hotel 3050 Jackson Ave, Ann Arbor, MI 48103 Registration and details at https://cystinosis.org/event/2026symposium/ Questions? Email [email protected] The CRN Scientific Symposium is a one-day, peer-to-peer meeting bringing together physicians, clinicians, researchers, …
SMRM 2026 — 12th Annual Conference of the Society for Mitochondrial Research and Medicine Description: SMRM 2026 brings together clinicians, researchers, patient advocates, and rare disease experts to advance conversations around mitochondrial science, medicine, research, and patient care. In collaboration with IndoUSrare, the conference will provide a platform for knowledge sharing, scientific exchange, and collaboration …
Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …
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Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk about topics such as adopting an anti-inflammatory diet and functional medicine. At the end of each meeting, they invite participants to join in a short …
Continue reading "Pericarditis Alliance Virtual Support Group Every 1st Saturday"
The SIAMG - Indo US Bridging RARE Summit 2026 brings together patients, researchers, clinicians, industry leaders, innovators, and advocates to strengthen collaboration and accelerate progress in rare disease research, diagnosis, therapies, and patient care. The Summit will serve as a platform for cross-border knowledge exchange and meaningful partnerships across the rare disease community. Date: December …
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Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …
Continue reading "🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings"
Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk about topics such as adopting an anti-inflammatory diet and functional medicine. At the end of each meeting, they invite participants to join in a short …
Continue reading "Pericarditis Alliance Virtual Support Group Every 1st Saturday"
Pericarditis Alliance is so pleased to offer three new monthly virtual support groups for patients and their families to check in, connect, and learn from each other. Registration is open for one month at a time and will be open for each group by the Friday after the previous meeting. Register for each group through …
Continue reading "Pericarditis Alliance – Shares From the Collective hosted by Lisa"
Pericarditis Alliance is so pleased to offer three new monthly virtual support groups for patients and their families to check in, connect, and learn from each other. Registration is open for one month at a time and will be open for each group by the Friday after the previous meeting. Register for each group through …
Continue reading "Pericarditis Alliance Support Groups – Pericarditis Under 30 hosted by Alexa"
Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …
Continue reading "🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings"
Moebius Syndrome Awareness Day is on January 24! Moebius syndrome is a rare, neurological condition that impacts 2 to 20 per million births. The Moebius Syndrome Foundation invites everyone to learn more about Moebius syndrome and the resources offered by the Moebius Syndrome Foundation at www.moebiussyndrome.org. It causes facial paralysis or weakness and can cause …
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