Name: Pericarditis Alliance Virtual Support Group Every 1st Saturday
Start: 2026-11-07T13:00:00-05:00
End: 2026-11-07T14:30:00-05:00

List
Month

October 2026
Sickle Cell Disease Association of America at the 54th Annual National Convention

October 15 - October 17

The Sickle Cell Disease Association of America Inc., a national nonprofit organization that advocates for people affected by sickle cell disease, will hold its 54th annual national convention Thursday, Oct. 15, through Saturday, Oct. 17, at the Embassy Suites by Hilton in Concord, North Carolina. You are invited to join the Sickle Cell Disease Association …

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2026RNDS October 15 – 17 2026, Hybrid Conference

October 15 - October 17

"Siegel Rare Neuroimmune Association A three-day hybrid (in-person and online) educational event for those with acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM), as well as their families, care partners, and medical professionals. About The RNDS was created to …

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🌟 Raymond A. Wood Foundation Survivor Support Group – Monthly Virtual Meetings

October 17 @ 3:00 pm - 5:00 pm EDT

Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers a monthly virtual gathering for adult survivors of hypothalamic-pituitary brain tumors. Moderated by brain tumor survivor Jason Burris, these sessions provide a safe space to …

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Webinar: Make an Impact with Your State’s Rare Disease Advisory Council

October 22 @ 1:00 pm - 2:00 pm EDT

Rare Disease Advisory Councils (RDACs) give people impacted by rare diseases a meaningful voice in state government, and an opportunity to help shape policies and programs impacting the rare disease community. During this webinar, we’ll teach you how RDACs operate, and the different ways that advocates can advance and strengthen the work of a council. …

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2026 NORD Rare Diseases & Orphan Products Breakthrough Summit

Featured October 25 - October 27

Grand Hyatt in Washington, D.C. 1000 H Street NW, Washington, DC, United States

The 2026 NORD Rare Diseases + Orphan Products Breakthrough Summit will welcome more than 900 key stakeholders in the rare disease community to Washington, D.C. on October 25-27, 2026. This event brings together thought leaders in industry, academia, patient advocacy, and government for the latest updates on rare disease diagnosis, drug development, research, patient engagement, public policy …

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NORD Volunteer Information Session

October 29 @ 4:00 pm - 5:00 pm EDT NORD Volunteer Meeting

In this session, NORD staff will provide an overview of NORD's volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you can make an impact. We will conclude with an open-floor discussion, providing a space for you to ask questions and determine the next steps for …

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10th Annual Food Fight for Scleroderma

October 29 @ 6:00 pm - 9:00 pm EDT

10th Annual Food Fight for Scleroderma Date: Thursday, October 29, 2026 Time: 6:00–9:00 p.m. | First Bite VIP begins at 5:30 p.m. Location: Mile High Station, 2027 W. Colfax Ave., Denver, CO 80204 Join the National Scleroderma Foundation Rocky Mountain Chapter for the 10th Annual Food Fight for Scleroderma, Denver’s signature culinary event supporting people …

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November 2026
Abbey Meyers Khushi Bridging Rare Awards & Gala 2026

November 1

The Abbey Meyers Khushi Bridging Rare Awards & Gala 2026, hosted by IndoUSrare, is a fundraising gala dedicated to supporting our mission and creating greater opportunities for the rare disease community. Every person who joins, helps strengthen our community and supports the mission of IndoUSrare. Highlights of the evening: Abbey Meyers Khushi Bridging Rare Awards …

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Join NORD’s Running for Rare Cheer Squad for the 2026 TCS NYC Marathon

November 1

New York New York, NY, United States

Make a difference and join NORD’s Running for Rare Cheer Squad at the 2026 TCS New York City Marathon! Join NORD’s Running for Rare Cheer Squad and help bring energy, encouragement, and support to runners along the course. Your presence will help motivate NORD’s team and show the rare disease community that they are surrounded …

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International Pemphigus and Pemphigoid Foundation (IPPF) Scientific Seminar

November 2 @ 11:00 am - 12:15 pm EST

Join the International Pemphigus and Pemphigoid Foundation (IPPF) for the next Scientific Seminar on Monday, November 2nd 11:00 AM - 12:15 PM EST/ 5:00 PM - 6:15 PM (17:00 - 18:15) Central European Time. In close cooperation with Drs. Ralf Ludwig & Katja Bieber of the Lübeck Institute for Experimental Dermatology at the University of …

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Submission Deadline! TANGO2 Research Foundation Grant Cycle

November 6

TANGO2 Research Foundation T2RF Grant Cycle 7 is OPEN! Now accepting Letters of Intent (LOIs) The TANGO2 Research Foundation (T2RF) is now accepting LOIs for 2027 Research Grants, supporting innovative seed and pilot research that advances our understanding of TANGO2 Deficiency Disorder (TDD). These grants are designed to help researchers test promising ideas, establish feasibility, …

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Pericarditis Alliance Virtual Support Group Every 1st Saturday

November 7 @ 1:00 pm - 2:30 pm EST

Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk about topics such as adopting an anti-inflammatory diet and functional medicine. At the end of each meeting, they invite participants to join in a short …

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October 2026

November 2026

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