*Win a 2026/ 2027 Membership to Salmon Falls Country Club Hollis, ME $100 minimum donation per chance 125 chances to win Donate June 11- July 9th Winner selected LIVE July …
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Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …
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For many rare disease patients, medical nutrition products are life-sustaining medicine, yet insurance coverage for medical nutrition is inconsistent and varies widely based on a patient's diagnosis, insurance plan type, …
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ED for EDS4 presents their 3rd Annual Golf Tournament to benefit the National Organization for Rare Disorders, hosted at the Heritage Country Club in Charlton, MA. Swing by after the …
In an era of scientific and technological advances, rare disease care is changing every day. Join us for a robust panel discussion diving into different approaches to navigate and improve …
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Rare Cancer Day is an annual celebration devoted to raising awareness about rare cancers and the challenges people living with them face. This year, Rare Cancer Day is being recognized …
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Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk …
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ED for EDS4 presents its 1st Annual Poker Run on Sunday, September 13 in Charlton, MA. Click here to enlarge the image.
Join NORD’s Rare Cancer Coalition on Thursday, September 17 at 12 p.m. ET for a webinar focused on exploring how patient perspectives can help strengthen and improve rare cancer research ahead of Rare …
Register today for the 2026 MSD Virtual Summit! This FREE, two-day, online gathering will bring together researchers, clinicians, families, advocates, and partners from around the world. Through shared knowledge, lived experience, …
On September 19, the 2026 Face Forward Patient Support Summit will bring together patients, caregivers, clinicians and advocates for an inspiring day of connection, education, and empowerment. This event will …
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7th Annual Free All-Community Virtual MSA Conference - September 19-20, 2026 MSA Hub / Conference Registration MSA-Hub.circle.so Exciting lectures with both clinicians & researchers about MSA diagnosis, orthostatic hypotension, alpha-synuclein, …
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