Are you a collegiate student interested in starting a NORD Students for Rare chapter on campus? Come and learn more about the program and next steps during our New Chapter …
Continue reading "Students for Rare New Chapter Info Session – August"
Come on out and support Maeve! Raffles and 15% of drink sales benefit NORD. RSVP Here
*Win a 2026/ 2027 Membership to Salmon Falls Country Club Hollis, ME $100 minimum donation per chance 125 chances to win Donate June 11- July 9th Winner selected LIVE July …
Continue reading "Support Calley Forbes Fundraising for NORD Running for Rare!"
Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …
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For many rare disease patients, medical nutrition products are life-sustaining medicine, yet insurance coverage for medical nutrition is inconsistent and varies widely based on a patient's diagnosis, insurance plan type, …
Continue reading "Webinar: Understanding Medical Nutrition and Insurance Coverage Challenges"
ED for EDS4 presents their 3rd Annual Golf Tournament to benefit the National Organization for Rare Disorders, hosted at the Heritage Country Club in Charlton, MA. Swing by after the …
In an era of scientific and technological advances, rare disease care is changing every day. Join us for a robust panel discussion diving into different approaches to navigate and improve …
Continue reading "Webinar: Innovative Approaches to Improving Your Rare Disease Care"
In this session, NORD staff will provide an overview of NORD's volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you …
Rare Cancer Day is an annual celebration devoted to raising awareness about rare cancers and the challenges people living with them face. This year, Rare Cancer Day is being recognized …
Continue reading "Webinar: Recognizing Rare Cancer Day Through Action"
Pericarditis Alliance offers a once a month virtual support group for patients and their families to check in, connect and learn from each other. They invite speakers to talk …
Continue reading "Pericarditis Alliance Virtual Support Group Every 1st Saturday"
ED for EDS4 presents its 1st Annual Poker Run on Sunday, September 13 in Charlton, MA. Click here to enlarge the image.
Register today for the 2026 MSD Virtual Summit! This FREE, two-day, online gathering will bring together researchers, clinicians, families, advocates, and partners from around the world. Through shared knowledge, lived experience, …
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