ED for EDS4 Poker Run
ED for EDS4 presents its 1st Annual Poker Run on Sunday, September 13 in Charlton, MA. Click here to enlarge the image.
ED for EDS4 presents its 1st Annual Poker Run on Sunday, September 13 in Charlton, MA. Click here to enlarge the image.
Join NORD’s Rare Cancer Coalition on Thursday, September 17 at 12 p.m. ET for a webinar focused on exploring how patient perspectives can help strengthen and improve rare cancer research ahead of Rare …
Register today for the 2026 MSD Virtual Summit! This FREE, two-day, online gathering will bring together researchers, clinicians, families, advocates, and partners from around the world. Through shared knowledge, lived experience, …
On September 19, the 2026 Face Forward Patient Support Summit will bring together patients, caregivers, clinicians and advocates for an inspiring day of connection, education, and empowerment. This event will …
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7th Annual Free All-Community Virtual MSA Conference - September 19-20, 2026 MSA Hub / Conference Registration MSA-Hub.circle.so Exciting lectures with both clinicians & researchers about MSA diagnosis, orthostatic hypotension, alpha-synuclein, …
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Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …
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Join this fun New England Patriots-themed fundraiser hosted by Julia Maderia in East Bridgewater, MA. Support Julia's fundraising efforts for NORD Running for Rare. Click here to read more and …
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Join Mission MSA for our Path to a Cure in Philadelphia! On Sunday, September 20 at 9:00am ET, the MSA community will come together at Penn Park in partnership with …
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Rare Cancer Day, September 23 Rare Cancer Day is an annual awareness day devoted to shining a light on rare cancers and the issues people living with them face. Spearheaded by …
Join the National Ataxia Foundation and Friedreich's Ataxia Research Alliance in advocating for Ataxia and rare disease related policy issues during their annual United Against Ataxia Hill Day on September …
Registration is now open for the 2026 WDA Annual Conference, taking place September 25–26 in Chicago. Co-hosted by Northwestern University Feinberg School of Medicine’s Wilson Disease Center of Excellence and …
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NORD's free virtual event for Spanish-speaking rare disease patients and families (October 3) Registration is now open for NORD’s first #LivingRare virtual event entirely in Spanish! https://bit.ly/4i6JPzG Join us Saturday, …
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