Join the IPPF for their next IN PERSON Pacific Northwest Support Group Meeting on October 10th at the Seattle Public Library. Living with pemphigus or pemphigoid is hard enough, but …
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Join Cure HHT in Cape Cod, October 12-16, 2026, as breakthroughs set sail at the 16th HHT International Scientific Conference. Together, we'll explore the latest advances in HHT research, diagnosis, …
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Join the IPPF for their next Tri-State New York Virtual Support Group on Wednesday October 14, 2026 • 6:30 pm - 8:30 pm (EST). Living with pemphigus or pemphigoid is …
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The Sickle Cell Disease Association of America Inc., a national nonprofit organization that advocates for people affected by sickle cell disease, will hold its 54th annual national convention Thursday, Oct. …
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"Siegel Rare Neuroimmune Association A three-day hybrid (in-person and online) educational event for those with acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum …
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Survivor Support Group – Monthly Virtual Meetings Dates: Third Saturday of each monthTime: 3:00 PM ETLocation: Online via ZoomRegistration: Register here The Raymond A. Wood Foundation's Survivor Support Group offers …
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Join the IPPF for their next Patient Education Webinar on November 13, 11 am PST/ 2:00 pm EST where a physician expert will have an open Q&A session where you …
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Rare Disease Advisory Councils (RDACs) give people impacted by rare diseases a meaningful voice in state government, and an opportunity to help shape policies and programs impacting the rare disease …
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The 2026 NORD Rare Diseases + Orphan Products Breakthrough Summit will welcome more than 900 key stakeholders in the rare disease community to Washington, D.C. on October 25-27, 2026. This event brings …
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In this session, NORD staff will provide an overview of NORD's volunteer programming. This is designed to give you a clear understanding of our mission and the various ways you …
10th Annual Food Fight for Scleroderma Date: Thursday, October 29, 2026 Time: 6:00–9:00 p.m. | First Bite VIP begins at 5:30 p.m. Location: Mile High Station, 2027 W. Colfax Ave., …
The Abbey Meyers Khushi Bridging Rare Awards & Gala 2026, hosted by IndoUSrare, is a fundraising gala dedicated to supporting our mission and creating greater opportunities for the rare disease …
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