Name: Webinar: Overcoming Insurance Barriers
Start: 2026-07-30T15:00:00-04:00
End: 2026-07-30T16:00:00-04:00

List
Month

February 2026
MPN Research Foundation Global Patient Unmet Needs Assessment

February 26 - December 31

2026 Global Patient Unmet Needs Assessment is open! @MPNResearch Foundation invites individuals living with a myeloproliferative neoplasm (MPN) to participate in the 2026 Global Patient Unmet Needs Assessment. Your insights help guide future research, improve resources, and highlights where unmet needs remain for those living with MPNs worldwide. Topics include: • MPN diagnosis & monitoring • Therapies …

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July 2026
Webinar: State Legislative Session Recap

July 22 @ 1:00 pm - 2:00 pm EDT

As state legislative sessions wind down, join NORD’s Rare Action Network (RAN) for an end of session policy & advocacy wrap up. During this webinar, we’ll discuss bills we tracked across the country, celebrate our hard-fought advocacy wins, and identify key opportunities for growth and improvement. We’ll also discuss potential areas of focus as we …

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Hydrocephalus Association HA CONNECT

July 23 - July 25

The Hydrocephalus Association will host HA CONNECT, its 19th Annual National Conference on Hydrocephalus, in Indianapolis from July 23–25, 2026. Families, clinicians, researchers, and industry leaders will gather to connect, learn, and explore the latest advancements in hydrocephalus treatment, management, and everyday living. hydrocephalusconference.org
Webinar: Overcoming Insurance Barriers

July 30 @ 3:00 pm - 4:00 pm EDT

If you are impacted by a rare disease, you are likely spending countless hours navigating health insurance. In this session, we will discuss common insurance barriers faced by patients and caregivers living with a rare disease, and tips to overcome them. This panel incorporates several unique perspectives for every step in your journey that you …

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February 2026

July 2026

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