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About the Corporate Council

Any company engaged in developing orphan products or providing services to the pharmaceutical industry would benefit from membership in the NORD Corporate Council. The Council provides a unique opportunity for start-up and established companies to engage with top experts in the rare disease community in addressing topics of mutual interest.

View the list of current members  >

Membership Benefits

Membership in the Corporate Council reflects your company’s leadership and commitment to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and service. The Council provides unique opportunities to engage with NORD’s patient organization members, industry leaders and top scientific, clinical, and policy experts in the worldwide rare disease community.

Specific benefits include:

  • Participation in two annual meetings and monthly teleconferences. Major areas of focus are policy and regulation, patient access and reimbursement and research and intelligence. View events >
  • Timely news alerts, updates, and interaction with NORD leadership.
  • Access to NORD’s Scientific and Medical Advisory Committee, Board of Directors, National and Associate Member Organizations, senior staff, key policymakers and industry experts.
  • Discounted fees on certain NORD’s products and services.
  • Clinical trials recruitment assistance and free publication of clinical trial announcements in NORD publications.
  • Opportunity to sponsor NORD’s patient support, education and advocacy programs.
  • Networking opportunities with other companies and health-related industries.
  • Recognition in NORD’s public outreach including its e-newsletter, website, and Council materials.

Membership Levels

  1. Corporate Product Member
    Companies that currently market one or more orphan drugs or devices Annual Contribution: $25,000
  2. Corporate Research Member
    Companies that currently are not marketing but are developing an orphan drug or device Annual Contribution: $10,000
  3. Corporate Health Care Business Member
    Companies that are essential partners to Corporate Product and Corporate Research members Annual Contribution: $20,000

Corporate Council Resources

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Corporate Council Meetings

NORD sponsors two annual meetings and on-going teleconferences. The major areas of focus are policy and regulation, patient access and reimbursement, and research and intelligence. View events >

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COUNCIL CODE OF CONDUCT

All companies who join the Council must adhere to the Code of Conduct outlining NORD’s interactions with its corporate members.  More >

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Additional information

For more information about the Corporate Council, email council@rarediseases.org.