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About the Corporate Council

The NORD Corporate Council is composed of a select group of leading companies committed to helping people with rare diseases. Members include pharmaceutical, biotech and medical device companies that are developing or marketing therapeutic or diagnostic products, as well as companies that are engaged in other aspects of healthcare for the rare disease/orphan product community such as specialty pharmacies, distributors, contract research organizations, integrated healthcare systems and consulting firms.

View the list of current members  >

Membership Benefits

Membership on the Council demonstrates a commitment to the identification, diagnosis, treatment and cure of rare disorders through programs of education, advocacy, research and service. The Council provides unique opportunities for companies to engage with experts in the rare disease community, not only with patient advocacy organizations that constitute NORD’s members, but also with top scientific, clinical and policy experts and leaders in the worldwide rare disease community.

Specific benefits for Pre-Clinical Development, Clinical Development, and Approved Product Members include:

  • Complimentary participation in two Corporate Council Member meetings each year.
  • Invitations to participate in monthly policy calls
  • Invitations to participate in quarterly calls
  • Access to NORD’s senior staff and leaders in the rare disease community
  • Timely news alerts
  • Networking opportunities
  • Special recognition

Special Benefits for Health Care Business Members Include: 

  • Complimentary participation in two Corporate Council Member meetings each year
  • Invitations to participate in quarterly calls
  • Access to NORD’s senior staff and leaders in the rare disease community
  • Timely news alerts
  • Networking opportunities
  • Special recognition

Membership Levels

  1. Pre-Clinical Member
    Companies that currently have one or more orphan product candidates in pre-clinical research: $5,000
  2. Clinical Development Member
    Companies that currently are not marketing but have one or more orphan product candidates in clinical trials: $10,000
  3. Corporate Product Member
    Companies that currently market one or more orphan drugs or devices: $25,000
  4. Business Member
    Companies that are essential partners to pre-clinical, clinical and product members: $20,000

Corporate Council Resources

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Corporate Council Meetings

NORD sponsors two annual meetings and on-going teleconferences. The major areas of focus are policy and regulation, patient access and reimbursement, and research and intelligence. View events >

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COUNCIL CODE OF CONDUCT

All companies who join the Council must adhere to the Code of Conduct outlining NORD’s interactions with its corporate members.  More >

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Additional information

For more information about the Corporate Council, email council@rarediseases.org.