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NORD AND TRIO HEALTH PUBLISH NEW BOOK TO...

This collection of real-world insights is informed by scientifically validated, patient-reported data collected by NORD’s registry community.

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National Gathering of the Rare Disease C...

Living Rare, Living Stronger will bring the rare community together with physicians, medical students, and allied health professionals for a program of learning, sharing and connecting.

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NORD Releases Principles for Assessing P...

NORD developed key drug pricing principles with the needs of the rare disease community in mind.

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Rare Action Network®

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Rare Disease Database

Reports on over 1200 rare diseases

Rare Disease Day

Official US website for RDD
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Alone we are rare. Together we are strong.®