For Rare Disease Patients and Families - NORD (National Organization for Rare Disorders)

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This collection of real-world insights is informed by scientifically validated, patient-reported data collected by NORD’s registry community.

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NORD developed key drug pricing principles with the needs of the rare disease community in mind.

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Rare Action Network®

State by State Advocacy Information

Patient Assistance

Patient Assistance Programs

Rare Disease Database

Reports on over 1200 rare diseases

Rare Disease Day

Official US website for RDD

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