For Rare Disease Patients and Families - NORD (National Organization for Rare Disorders)

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All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018

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The 2018 report has grown to cover several emerging issues. Download your copy today.

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Register now for the NORD Rare Summit to advance the dialogue on issues of unprecedented importance to the rare disease community.

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Rare Action Network

State by State Advocacy Information

Patient Assistance

Patient Assistance Programs

Rare Disease Database

Reports on over 1200 rare diseases

Rare Disease Day

Official US website for RDD

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Learn about upcoming meetings for patients and caregivers. Learn more >

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