For Rare Disease Patients and Families - NORD (National Organization for Rare Disorders)

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June 1-4 in Ashford, CT: Second-ever Rare Disease Summer Family Camp

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To request a speaker for your classroom or event, write to education@rarediseases.org

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Dedicated to increasing public and professional awareness and understanding of hereditary hemorrhagic telangiectasia (HHT)

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Rare Action Network

State by State Advocacy Information

Patient Assistance

Patient Assistance Programs

Rare Disease Database

Reports on over 1200 rare diseases

Rare Disease Day

Official US website for RDD

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