RareCare®
Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.
Read NORD’s Coronavirus: Business Continuity Response for RareCare® patient assistance programs.
Other Resources
If NORD does not have a program for your disease, you may find one through another provider. View More>
Assistance Programs
Get Started
To apply for assistance you first need to locate the program below by disease state. Then follow the related contact information. If you do not see a patient assistance program listed that meets your specific need, please contact us for more information at: 1-800-999-6673.
NORD’s Patient Services Representatives are available during the following hours:
Patients can contact NORD’s Patient Services Representatives at 1-800-999-6673 during the following hours:
Si deseas hablar con alguien en espanol por favor llame al (844) 259-7178 para asistencia.
Are you eligible?
Eligibility criteria can vary by program but most of NORD’s patient assistance programs require the following:
- Does the patient have an applicable diagnosis or physician referral?
- Does the patient currently live in the United States?
- Does the patient meet NORD’s financial need criteria?
How it works
Maximum award levels vary by program. Awards are made for a calendar year, and patients may reapply for subsequent years. NORD is able to offer same day approval for programs.
Rare Caregiver Respite Program
This first-of-its-kind assistance program is designed for caregivers of a child or adult diagnosed with a rare disorder. NORD understands that caring for a loved one is a generous gift that demands significant amounts of time, attention, patience and dedication.
The Respite Program provides financial assistance to enable the caregiver a break to attend a conference, event or simply have an afternoon or evening away from caregiving. Financial assistance will be granted up to $500 annually for those who qualify.
What care may be covered?
- Registered Nurse (RN)
- Licensed Practical Nurse (LPN)
- Certified Nursing Assistant (CNA)
- Home Health Aide (HHA)
- Non-professional caregiver
Who is eligible?
The caregiver must be a US citizen or permanent resident of the United States for at least six months with evidence of residency, and be willing to undergo a financial evaluation of need to determine if they fall within the program’s financial eligibility guidelines. Additionally, the patient for whom care is being provided must have a confirmed rare disease diagnosis.
How do you apply?
Awards are granted on a first come, first served basis to eligible individuals. There is no fee to apply. Contact a Patient Services Representative at 203.616.4328 or email [email protected].
Read stories from grantees
Support this program and make a positive impact on families throughout the rare community. Contact us at [email protected] to make a donation to sustain the Rare Caregiver Respite Program.