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RareCare®

Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

RareCare<sup>®</sup>

Other Resources

If NORD does not have a program for your disease, you may find one through another provider. View More>

Assistance Programs

Co-Pay Assistance Program
Contact: 1-844-251-7425
Email: [email protected]
Fax: 1-203-267-0847

Premium and Co-Pay Assistance Program
Contact:(855) 567-3721
Email: [email protected]
Fax:(203) 349-3192

 

Clinical Trial Travel & Lodging
Contact: (866) 647-9325
Email: [email protected]
Fax: (203) 674-9939

Premium Assistance
Co-Pay Assistance
Medical Assistance
Email: [email protected]
Phone: 203-616-4326
Fax: 203-405-0528

Clinical Trial Travel & LodgingStudy closed to new patients
Contact: (800) 999-6673
Email: [email protected]
Fax: (203) 635-4172

Co-Pay assistance
Medical Assistance
Contact: 877-291-7805
Email:  [email protected]
Fax: 203-486-8803

Co-Pay Assistance and Emergency Relief Program
Contact: 203-635-2644
Email: [email protected]
Fax: 203-405-8178
Travel & Lodging Assistance Program
Contact: 203-616-4329
Email: [email protected]

Fax: 203-267-9529

Carnitor Medication Assistance Program
Contact: 855-653-3220
Email: [email protected]
Fax: 203-349-3279

 

 

Co-Pay Assistance Program
Contact: 1-855-864-4024
Email: [email protected]
Fax: 1-203-349-3003

 

Co-Pay Assistance
Contact: 1-855-864-4027
Email: [email protected]
Fax: 1-203-635-4243

Emergency Assistance Program
CoPay Program
Medical Assistance Program
Contact: 855-201-5096
Email: [email protected]
Fax: 203-486-8462
*learn more about this program*

*aprender más sobre este programa*

Clinical Trial Travel & Lodging Assistance
Contact: (855) 864-4026
Email: [email protected]
Fax: (203) 349-3278

Co-Pay Assistance
Premium Assistance
Conditions: Congenital Sucrase-Isomaltase Deficiency
Contact: 1-800-275-0589
Email: [email protected]
Fax: 1-203-517-0978

 

Co-Pay Assistance
Contact: 1-855-567-3801
Email: [email protected]
Fax: 1-203-349-3278

Medical Assistance
Co-Pay Assistance

Premium Assistance
Contact: 1-855-864-4018
Email: [email protected]
Fax: 1-203-517-0978

Photopheresis Therapy Medication Assistance
Contact: 877-241-7220
Email: [email protected]
Fax: 203-428-4472

Emergency Relief Program
Co-Pay Program
Medical Assistance Program
Contact: 855-201-5087
Email: [email protected]
Fax: 203-486-8033
*learn more about this program*

*aprender más sobre este programa*

Co-Pay Assistance
Medical Assistance
Contact: 866-218-7975
Email: [email protected]
Fax: 203-405-8778

Travel & Lodging Assistance


Feinstein Institute-DBA ACE-011 Study Travel & Lodging Assistance
Contact: 1-203-616-4327
Email: [email protected]
Fax: 1-203-635-4163

TFP-DBA Study Travel & Lodging Assistance
Contact: 1-800-459-7599
Email: [email protected]rarediseases.org
Fax: 1-203-586-0134

Clincial Trial Travel & Lodging
Contact: 1-877-805-0411
Email: [email protected]
Fax: 1-203-274-8700

Copay Assistance
Medical Assistance
Phone: 866-218-8172
Email: [email protected]
Fax: 203-263-9597

Clinical Trial Travel & Lodging: PTC 124-GD-016-DMD
Contact: 1-866-647-9325 x 333
Email: [email protected]
Fax: 1-203-674-9941

Clinical Trial Travel & Lodging: FG-3019
Contact: 1-844-876-0774
Email: [email protected]
Fax: 1-203-798-7413

Clinical Trial Travel & Lodging Study closed to new patients
Contact: 1-855-316-4755
Email: ion[email protected]
Fax: 203-349-3206

Co-Pay Assistance
Contact: 1-855-567-3801
Email: [email protected]
Fax: 1-203-349-3278

Clinical Trial Travel & Lodging
Contact: 844-566-2230
Email:  [email protected]
Fax: 203-349-2046

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-855-864-4019
Email: [email protected]
Fax: 1-203-349-3189

Matulane Medication Assistance
Contact: 1-855-653-3220
Email: [email protected]
Fax: 1-203-349-3282

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-855-864-4021
Email: [email protected]
Fax: 1-203-349-3190

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-866-828-8902
Email: [email protected]
Fax: 1-203-349-8446

*learn more about this program*

Medication Assistance
Contact: 1-877-279-2459
Email: [email protected]
Fax: 1-203-349-8172

Clinical Trial Travel & Lodging 
Contact: 1-877-805-0411
Email: [email protected]
Fax: 1-203-274-8700

Premium & Copay Patient Assistance – Accepting Applications 
Contact: 203-616-4308
Fax: 203-349-3198
Email: [email protected]
*Click here for more information about this program*

Co-Pay Assistance
Contact: 1-855-864-4028
Email: [email protected]
Fax: 1-203-614-1713

Medical Assistance
Co-Pay Assistance
Premium Assistance
Contact: 1-844-675-2354
Email: [email protected]
Fax: 1-203-349-3200

Co-Pay Assistance
Contact: 1-855-567-3801
Email: [email protected]
Fax: 1-203-349-3278

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-877-798-8716
Email: [email protected]
Fax: 1-203-349-3203

Copay Assistance
Premium Assistance

Contact: 855-202-5826
Email: [email protected]
Fax: 203-405-8795

 

Co-Pay Assistance
Contact: 1-855-567-3801
Email: [email protected]
Fax: 1-203-349-3278

Co-Pay Assistance Program
Contact: 1-855-567-3680
Fax: 1-203-349-3188

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-855-567-3814
Email: [email protected]
Fax: 1-203-517-4297

*learn more about this program*

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 877-291-7756
Email: [email protected]
Fax: 203-586-0138

 

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-855-628-0646
Email: [email protected]
Fax: 1-203-798-2964

Clinical Trial Travel & Lodging
Contact: 1-800-634-7207
Email: [email protected]
Fax: 203-635-4095
*learn more about this program*

Clinical Trial Travel & Lodging
Contact: 203-616-4324
Email: [email protected]
Fax: 203-263-9928

Co-Pay Assistance
Contact: 1-855-218-9877
Email: [email protected]
Fax: 1-203-405-0802

Clinical Trial Travel & Lodging: CS12 SMNRX | Program Closed
Contact: 1-855-316-4755
Email: [email protected]
Fax: 1-203-349-3208

Clinical Trial Travel & Lodging: CS3A SMNRX | Program Closed
Contact: 1-855-316-4755
Email: [email protected]
Fax: 1-203-349-3208

Premium assistance
Copay assistance
Medical assistance
Contact: 877-291-7792
Email: [email protected]
Fax: 203-405-0825

Medication Assistance
Contact: 1-877-279-2459
Email: [email protected]
Fax: 1-203-349-8172

 

Patients wishing to apply for assistance must contact the Undiagnosed Network (UDN) for referral to NORD
UDN email: [email protected]
Phone: 844.746.4836

Co-Pay Assistance
Emergency Relief Program
Medical Assistance
Medical Foods and Supplements

Contact: 1-877-333-1860
Email: [email protected]
Fax: 1-203-405-0802
*learn more about this program*


*aprender más sobre este programa*

Urea Cycle Disorders Diagnostic Testing
Phone: 877-333-1860
Fax: 203-405-0802
Email: [email protected]
*learn more about this program here*

*aprender más sobre este programa*

Co-Pay Assistance
Medical Assistance
Contact: 877-291-7805
Email: [email protected]
Fax number: 203-486-8803

Get Started

To apply for assistance you first need to locate the program below by disease state. Then follow the related contact information. If you do not see a patient assistance program listed that meets your specific need, please contact us for more information at: 1-800-999-6673.

NORD’s Patient Services Representatives are available during the following hours:

Patients can contact NORD’s Patient Services Representatives at 1-800-999-6673 during the following hours:

Monday-Thursday 8:30 am – 7:00 pm EST
Friday 8:30 am – 6:00 pm EST

Si deseas hablar con alguien en espanol por favor llame al (844) 259-7178 para asistencia.

Are you eligible?

Eligibility criteria can vary by program but most of NORD’s patient assistance programs require the following:

  • Does the patient have an applicable diagnosis or physician referral?
  • Does the patient currently live in the United States?
  • Does the patient meet NORD’s financial need criteria?

How it works

Maximum award levels vary by program. Awards are made for a calendar year, and patients may reapply for subsequent years. NORD is able to offer same day approval for programs.

Rare Caregiver Respite Program

This first-of-its-kind assistance program is designed for caregivers of a child or adult diagnosed with a rare disorder. NORD understands that caring for a loved one is a generous gift that demands significant amounts of time, attention, patience and dedication.

The Respite Program provides financial assistance to enable the caregiver a break to attend a conference, event or simply have an afternoon or evening away from caregiving. Financial assistance will be granted up to $500 annually for those who qualify.

What care may be covered?

  • Registered Nurse (RN)
  • Licensed Practical Nurse (LPN)
  • Certified Nursing Assistant (CNA)
  • Home Health Aide (HHA)
  • Non-professional caregiver

Who is eligible?

The caregiver must be a US citizen or permanent resident of the United States for at least six months with evidence of residency, and be willing to undergo a financial evaluation of need to determine if they fall within the program’s financial eligibility guidelines. Additionally, the patient for whom care is being provided must have a confirmed rare disease diagnosis.

How do you apply?

Awards are granted on a first come, first served basis to eligible individuals. There is no fee to apply. Contact a Patient Services Representative at 203.616.4328 or email [email protected].

Read stories from grantees

Leah’s story

Debra’s story

Beth’s story


Support this program and make a positive impact on families throughout the rare community. Contact us at [email protected] to make a donation to sustain the Rare Caregiver Respite Program.