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RareCareSM

Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

RareCare<sup>SM</sup>

Other Resources

If NORD does not have a program for your disease, you may find one through another provider. View More>

Are you eligible?

Eligibility criteria can vary by program but most of NORD’s patient assistance programs require the following:

  • Does the patient have an applicable diagnosis or physician referral?
  • Does the patient currently live in the United States?
  • Does the patient meet NORD’s financial need criteria?

How it works

Maximum award levels vary by program. Awards are made for a calendar year, and patients may reapply for subsequent years. NORD is able to offer same day approval for programs.

Get Started

To apply for assistance you first need to locate the program below by disease state. Then follow the related contact information. If you do not see a patient assistance program listed that meets your specific need, please contact us for more information at: 1-800-999-6673.

NORD’s Patient Services Representatives are available during the following hours:

Monday-Thursday: 9:00 a.m.- 7:00 p.m. EST

Friday: 9:00 a.m.- 6:00 p.m. EST

Si deseas hablar con alguien en espanol por favor llame al (844) 259-7178 para asistencia.

Co-Pay Assistance Program
Contact: 1-844-251-7425
Email: ALL@rarediseases.org
Fax: 1-203-267-0847

Premium and Co-Pay Assistance Program
Contact:(855) 567-3721
Email: alpha-1@rarediseases.org
Fax:(203) 349-3192

 

Co-Pay Assistance Program
Contact: 1-855-567-3680
Email: autonomicdysreflexia@rarediseases.org
Fax:203-429-4153

Medication Assistance Program
Contact: 855-653-3220
Email: carnitor@rarediseases.org
Fax: 203-349-3279

 

 

Co-Pay Assistance Program
Contact: 1-855-864-4024
Email: CervicalDystonia@rarediseases.org
Fax: 1-203-349-3003

 

Co-Pay Assistance
Contact: 1-855-864-4027
Email: chorea@rarediseases.org
Fax: 1-203-635-4243

Emergency Assistance Program
Contact: 855-201-5096
Email: CGDassist@rarediseases.org
Fax: 203-486-8462
*learn more about this program*

Co-Pay Assistance
Contact:1-(800)-999-6673
Email: uveitis@rarediseases.org
Fax: 1-203-349-3187

Clinical Trial Travel & Lodging Assistance
Contact: (855) 864-4026
Email: cms@rarediseases.org
Fax: (203) 349-3278

Co-Pay Assistance
Premium Assistance
Conditions: Congenital Sucrase-Isomaltase Deficiency
Contact: 1-800-275-0589
Email: csid@rarediseases.org
Fax: 1-203-517-0978

 

Co-Pay Assistance
Contact: 1-855-567-3801
Email: caps@rarediseases.org
Fax: 1-203-349-3278

Medical Assistance
Co-Pay Assistance

Premium Assistance
Medication Assistance

Contact: 1-855-864-4018
Email: cushings@rarediseases.org
Fax: 1-203-517-0978

Medication Assistance
Contact: 1-877-241-7220
Email: photopheresis@rarediseases.org
Fax: 1-203-428-4472

Clinical Trial Travel & Lodging: PTC 124-GD-021-CF
Contact: 1-866-647-9325 x 333
Email: PTC-021-CF@rarediseases.org
Fax: 1-203-674-9940

Clinical Trial Travel & Lodging: PTC 124-GD-023-CF
Contact: 1-866-647-9325 x 333
Email: PTC-023-CF@rarediseases.org
Fax: 1-203-674-9941

Emergency Relief Program
Contact: 855-201-5087
Email: cystinosis_assist@rarediseases.org
Fax: 203-486-8033
*learn more about this program*

Co-Pay Assistance
Medical Assistance
Contact: 866-218-7975
Email: cystinuria@rarediseases.org
Fax: 203-405-8778

Medication Assistance
Contact: 844-810-1891
Email: Lixelle@rarediseases.org
Fax: 1- 203-428-4472

Travel & Lodging Assistance
Contact: 1-800-459-7599
Email: dba@rarediseases.org
Fax: 1-203-635-4163

Accepting Applications
Copay Assistance
Medical Assistance
Phone: 866-218-8172
Email: DMD@rarediseases.org
Fax: 203-263-9597

Clinical Trial Travel & Lodging: PTC 124-GD-020e-DMD
Contact: 1-866-647-9325 x 333
Email: PTC-020e-DMD@rarediseases.org
Fax: 1-203-674-9940

Clinical Trial Travel & Lodging: PTC 124-GD-016-DMD
Contact: 1-866-647-9325 x 333
Email: PTC-016-DMD@rarediseases.org
Fax: 1-203-674-9941

Clinical Trial Travel & Lodging: PTC 124-GD-020-DMD
Contact: 1-866-647-9325 x 333
Email: PTC-020-DMD@rarediseases.org
Fax: 1-203-674-9940

Clinical Trial Travel & Lodging: FG-3019
Contact: 1-844-876-0774
Email: fg-3019@rarediseases.org
Fax: 1-203-798-7413

Clinical Trial Travel & Lodging 
Contact: 1-855-316-4755
Email: ionis-CS12@rarediseases.org
Fax: 203-349-3206

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-855-864-4019
Email: gaucherdiseases@rarediseases.org
Fax: 1-203-349-3189

Medication Assistance
Contact: 1-855-653-3220
Email: matulane@rarediseases.org
Fax: 1-203-349-3282

Medication Assistance
Contact: 1-844-766-6538
Email: cystadane@rarediseases.org
Fax: 1-203-349-3280

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-855-864-4021
Email: huntersyndrome@rarediseases.org
Fax: 1-203-349-3190

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-866-828-8902
Email: hpp@rarediseases.org
Fax: 1-203-349-8446

Co-Pay Assistance
Contact: 1-844-314-4045
Email: igf1deficiency@rarediseases.org
Fax: 1-203-349-3198

Medication Assistance
Contact: 1-877-279-2459
Email: vsl3ds@rarediseases.org
Fax: 1-203-349-8172

Clinical Trial Travel & Lodging 
Contact: 1-877-805-0411
Email: eap001@rarediseases.org
Fax: 1-203-274-8700

Clinical Trial Travel & Lodging
Contact: 1-800-634-7207
Email: GLYCD001@rarediseases.org
Fax: 1-203-635-4095

Medical Assistance
Contact: 1-844-675-2354
Email: MPS-IV-A@rarediseases.org
Fax: 1-203-349-3200

Co-Pay Assistance
Contact: 1-855-567-3680
Email: motortic@rarediseases.org
Fax: 1-203-429-4153

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-877-798-8716
Email: mps-vi@rarediseases.org
Fax: 1-203-349-3203

Copay Assistance
Premium Assistance

Contact: 855-202-5826
Email: narcolepsy@rarediseases.org
Fax: 203-405-8795

 

Co-Pay Assistance
Contact: 1-844-827-8743
Email: noh@rarediseases.org
Fax: 1-203-349-3199

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-855-567-3814
Email: pnh@rarediseases.org
Fax: 1-203-517-4297

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 877-291-7756
Email: PeriodicParalysis@rarediseases.org
Fax: 203-586-0138

 

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-855-628-0646
Email: pku@rarediseases.org
Fax: 1-203-798-2964

Co-Pay Assistance
Contact: 1-855-864-4028
Email: Lgsseizures@rarediseases.org
Fax: 1-203-614-1713

Medication Assistance
Contact: 1-800-999-6673
Email: ITB@rarediseases.org
Fax: 1-203-349-3281

Co-Pay Assistance
Contact: 1-855-218-9877
Email: sbs@rarediseases.org
Fax: 1-203-405-0802

Clinical Trial Travel & Lodging: CS12 SMNRX
Contact: 1-855-316-4755
Email: ionis-CS12@rarediseases.org
Fax: 1-203-349-3208

Clinical Trial Travel & Lodging: CS3A SMNRX
Contact: 1-855-316-4755
Email: ionis-CS3A@rarediseases.org
Fax: 1-203-349-3208

Premium assistance
Copay assistance
Medical assistance
Contact: 877-291-7792
Email: tardivedyskinesia@rarediseases.org
Fax: 203-405-0825

Medication Assistance
Contact: 1-877-279-2459
Email: vsl3ds@rarediseases.org
Fax: 1-203-349-8172

 

Co-Pay Assistance
Medical Assistance
Medical Foods and Supplements

Contact: 1-877-333-1860
Email: UCD@rarediseases.org
Fax: 1-203-405-0802
*learn more about this program*

Medication Assistance
Contact: 1-800-999-6673
Email: buphenyl@rarediseases.org
Fax: 1-203-349-3277

Emergency Relief Program
Contact: 855-201-5139
Email: UCDassist@rarediseases.org
Fax: 203-486-8023
*learn more about this program here*