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RareCare®

Since 1987, NORD has provided assistance programs to help patients obtain life-saving or life-sustaining medication they could not otherwise afford. These programs provide medication, financial assistance with insurance premiums and co-pays, diagnostic testing assistance, and travel assistance for clinical trials or consultation with disease specialists.

Read NORD’s Coronavirus: Business Continuity Response for RareCare® patient assistance programs.

RareCare<sup>®</sup>

Other Resources

If NORD does not have a program for your disease, you may find one through another provider. View More>

Assistance Programs

Co-Pay Assistance Program
Medical Assistance Program
Contact: 1-844-251-7425
Email: [email protected]
Fax: 1-203-267-0847

Premium and Co-Pay Assistance Program
Contact:(855) 567-3721
Email: [email protected]
Fax:(203) 349-3192

 

Clinical Trial Travel & Lodging
Contact: (866) 647-9325
Email: [email protected]
Fax: (203) 674-9939

Premium Assistance
Co-Pay Assistance
Medical Assistance
Email: [email protected]
Phone: 203-616-4326
Fax: 203-405-0528

*learn more about this program*

Clinical Trial Travel & LodgingStudy closed
Contact: (800) 999-6673
Email: [email protected]
Fax: (203) 635-4172

Co-Pay assistance
Premium Assistance
Medical Assistance
Contact: 877-291-7805
Email:  [email protected]
Fax: 203-486-8803

Co-Pay Assistance and Emergency Relief Program
Contact: 203-635-2644
Email: [email protected]
Fax: 203-405-8178

Travel & Lodging Assistance Program
Contact: 203-616-4329
Email: [email protected]

Fax: 203-267-9529

*learn more about this program*

Carnitor Medication Assistance Program
Contact: 855-653-3220
Email: [email protected]
Fax: 203-349-3279

Co-Pay Assistance
Premium Assistance

Phone: 844-810-1891
Email [email protected]
Fax: 203-349-8431

Co-Pay Assistance Program
Contact: 1-855-864-4024
Email: [email protected]
Fax: 1-203-349-3003

 

Co-Pay Assistance
Contact: 1-855-864-4027
Email: [email protected]
Fax: 1-203-635-4243

*learn more about this program*

Emergency Assistance Program
CoPay Program
Medical Assistance Program
Contact: 855-201-5096
Email: [email protected]
Fax: 203-486-8462

*learn more about this program*

*aprender más sobre este programa*

Clinical Trial Travel & Lodging Assistance
Contact: (855) 864-4026
Email: [email protected]
Fax: (203) 349-3278

Co-Pay Assistance
Premium Assistance
Medical Assistance
Conditions: Congenital Sucrase-Isomaltase Deficiency
Contact: 1-800-275-0589
Email: [email protected]
Fax: 1-203-517-0978

*learn more about this program*

 

COVID-19 Critical Relief Program
Contact: 203.242.0497
Email: [email protected]

Premium & Medical Relief Program
Contact: 203.242.0497
Email: [email protected]

Co-Pay Assistance
Premium Assistance Program
Contact: 1-855-567-3801
Email: [email protected]
Fax: 1-203-349-3278

Medical Assistance
Co-Pay Assistance

Premium Assistance
Contact: 1-855-864-4018
Email: [email protected]
Fax: 1-203-517-0978

Photopheresis Therapy Medication Assistance
Contact: 877-241-7220
Email: [email protected]
Fax: 203-428-4472

Emergency Relief Program
Co-Pay Program
Medical Assistance Program
Contact: 855-201-5087
Email: [email protected]
Fax: 203-486-8033

*learn more about this program*
*aprender más sobre este programa*

Co-Pay Assistance
Premium Assistance
Medical Assistance

Contact: 866-218-7975
Email: [email protected]
Fax: 203-405-8778

*learn more about this program*

Travel & Lodging Assistance


Feinstein Institute-DBA ACE-011 Study Travel & Lodging Assistance
Contact: 1-203-616-4327
Email: [email protected]
Fax: 1-203-635-4163

TFP-DBA Study Travel & Lodging Assistance
Contact: 1-800-459-7599
Email: [email protected]rarediseases.org
Fax: 1-203-586-0134

Clincial Trial Travel & Lodging
Contact: 1-877-805-0411
Email: [email protected]
Fax: 1-203-274-8700

Copay Assistance
Medical Assistance
Phone: 866-218-8172
Email: [email protected]
Fax: 203-263-9597
*learn more about this program*

Clinical Trial Travel & Lodging: PTC 124-GD-016-DMD
Contact: 1-866-647-9325 x 333
Email: [email protected]
Fax: 1-203-674-9941

Clinical Trial Travel & Lodging: FG-3019
Contact: 1-844-876-0774
Email: [email protected]
Fax: 1-203-798-7413

Clinical Trial Travel & Lodging Study closed
Contact: 1-855-316-4755
Email: ion[email protected]
Fax: 203-349-3206

Co-Pay Assistance
Premium Assistance Program
Contact: 1-855-567-3801
Email: [email protected]
Fax: 1-203-349-3278

Clinical Trial Travel & Lodging
Contact: 844-566-2230
Email:  [email protected]
Fax: 203-349-2046

Co-Pay Assistance
Premium Assistance
Medical Assistance
Diagnostic Testing
Contact: 1-855-864-4019
Email: [email protected]
Fax: 1-203-349-3189

*learn more about this program*

Matulane Medication Assistance
Contact: 1-855-653-3220
Email: [email protected]
Fax: 1-203-349-3282

Co-Pay Assistance
Premium Assistance
Medical Assistance
Diagnostic Testing
Contact: 1-855-864-4021
Email: [email protected]
Fax: 1-203-349-3190

*learn more about this program*

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-866-828-8902
Email: [email protected]
Fax: 1-203-349-8446

*learn more about this program*

Medication Assistance
Contact: 1-877-279-2459
Email: [email protected]
Fax: 1-203-349-8172

Clinical Trial Travel & Lodging 
Contact: 1-877-805-0411
Email: [email protected]
Fax: 1-203-274-8700

Premium & Copay Patient Assistance – Accepting Applications 
Contact: 203-616-4308
Fax: 203-349-3198
Email: [email protected]

*Click here for more information about this program*

Co-Pay Assistance
Premium Assistance Program
Contact: 1-855-864-4028
Email: [email protected]
Fax: 1-203-614-1713

Medical Assistance
Co-Pay Assistance
Premium Assistance
Contact: 1-844-675-2354
Email: [email protected]
Fax: 1-203-349-3200

Co-Pay Assistance
Premium Assistance Program
Contact:1-855-567-3801
Email: [email protected]
Fax: 1-203-349-3278

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-877-798-8716
Email: [email protected]
Fax: 1-203-349-3203

*learn more about this program*

Copay Assistance
Premium Assistance

Contact: 855-202-5826
Email: [email protected]
Fax: 203-405-8795

 

Co-Pay Assistance
Premium Assistance Program
Contact: 1-855-567-3801
Email: [email protected]
Fax: 1-203-349-3278

Co-Pay Assistance
Medical Assistance
Contact: 203-202-8833
Email: [email protected]
Fax: 203-267-0550

Co-Pay Assistance Program
Contact: 1-855-567-3680
Fax: 1-203-349-3188

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 1-855-567-3814
Email: [email protected]
Fax: 1-203-517-4297

*learn more about this program*

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 877-291-7756
Email: [email protected]
Fax: 203-586-0138

 

Co-Pay Assistance
Premium Assistance
Medical Assistance
Medical Foods & Formulas
Contact: 1-855-628-0646
Email: [email protected]
Fax: 1-203-798-2964

*learn more about this program*

Clinical Trial Travel & Lodging
Contact: 1-800-634-7207
Email: [email protected]
Fax: 203-635-4095

*learn more about this program*

Clinical Trial Travel & Lodging
Contact: 203-616-4324
Email: [email protected]
Fax: 203-263-9928

Co-Pay Assistance
Premium Assistance Program
Contact: 1-855-218-9877
Email: [email protected]
Fax: 203-429-8717

Clinical Trial Travel & Lodging: CS12 SMNRX | Program Closed
Contact: 1-855-316-4755
Email: [email protected]
Fax: 1-203-349-3208

Clinical Trial Travel & Lodging: CS3A SMNRX | Program Closed
Contact: 1-855-316-4755
Email: [email protected]
Fax: 1-203-349-3208

Premium assistance
Copay assistance
Medical assistance
Contact: 877-291-7792
Email: [email protected]
Fax: 203-405-0825

Emergency Assistance Program
Contact: 203.275.0972
Email: [email protected]
Fax: 203.267.0386

*learn more about this program*

Medication Assistance
Contact: 1-877-279-2459
Email: [email protected]
Fax: 1-203-349-8172

 

Patients wishing to apply for assistance must contact the Undiagnosed Network (UDN) for referral to NORD
UDN email: [email protected]
Phone: 844-858-0451

Co-Pay Assistance
Emergency Relief Program
Medical Assistance
Medical Foods and Supplements

Contact: 1-877-333-1860
Email: [email protected]
Fax: 1-203-405-0802

*learn more about this program*

*aprender más sobre este programa*

Urea Cycle Disorders Diagnostic Testing
Phone: 877-333-1860
Fax: 203-405-0802
Email: [email protected]

*learn more about this program here*

*aprender más sobre este programa*

Patient Experience Assistance Program
This program is designed to provide the child diagnosed with WWS, a non-medical experience to enhance the child’s quality of life.
Contact: 877.291.7813
Email: [email protected]
Fax: 203.486.8130

Co-Pay Assistance
Premium Assistance
Medical Assistance
Contact: 877-291-7805
Email: [email protected]
Fax number: 203-486-8803

Get Started

To apply for assistance you first need to locate the program below by disease state. Then follow the related contact information. If you do not see a patient assistance program listed that meets your specific need, please contact us for more information at: 1-800-999-6673.

NORD’s Patient Services Representatives are available during the following hours:

Patients can contact NORD’s Patient Services Representatives at 1-800-999-6673 during the following hours:

Monday-Thursday 8:30 am – 7:00 pm EST
Friday 8:30 am – 3:00 pm EST

Si deseas hablar con alguien en espanol por favor llame al (844) 259-7178 para asistencia.


Are you eligible?

Eligibility criteria can vary by program but most of NORD’s patient assistance programs require the following:

  • Does the patient have an applicable diagnosis or physician referral?
  • Does the patient currently live in the United States?
  • Does the patient meet NORD’s financial need criteria?

Maximum award levels vary by program. Awards are made for a calendar year, and patients may reapply for subsequent years. NORD is able to offer same day approval for programs.


NORD COVID-19 Relief Programs

The NORD COVID-19 Critical Relief Program is designed to provide eligible rare disease patients with assistance for non-medical essential expenses, and the NORD COVID-19 Premium & Medical Relief Program is designed to provide eligible rare disease patients assistance with insurance premiums and limited medical expenses. Both programs are specifically for rare disease patients who have been directly impacted by the COVID-19 pandemic through job loss, reduced work hours, quarantine, etc. These programs are unable to assist with financial needs that are not a result of direct impact from the COVID-19 pandemic.

Eligibility criteria for NORD COVID-19 Relief Programs include:

  • The individual and/or immediate family within the household must have a confirmed rare disease diagnosis.
  • There must be a direct COVID-19 impact on the rare disease diagnosed individual or his/her immediate family within the household. Examples of direct impact include job loss, wage reduction, lay-off, physician order to cease working, etc.
  • The individual must be a US citizen or permanent resident of the United States for at least 6 months.
  • Applicants must meet financial eligibility criteria (at or below 400% of the Federal Poverty Level guidelines (FPL) or demonstrate financial impact/mitigating circumstances due to the COVID-19 pandemic (examples of mitigating factors impacting financial eligibility may include: loss of job/layoff; diminished work hours; inability to work due to risk of exposure, or due to caring for family member diagnosed with coronavirus (documentation will be requested)

Those who meet these criteria and wish to be considered for eligibility please email [email protected] or call 203.242.0497 for consideration.

We request your patience and understanding in delayed response times given the vastness of the COVID-19 impact. We are responding to inquiries in the order in which they are received.

Rare Caregiver Respite Program

This first-of-its-kind assistance program is designed for caregivers of a child or adult diagnosed with a rare disorder. NORD understands that caring for a loved one is a generous gift that demands significant amounts of time, attention, patience and dedication.

The Respite Program provides financial assistance to enable the caregiver a break to attend a conference, event or simply have an afternoon or evening away from caregiving. Financial assistance will be granted up to $800 annually for those who qualify.

What care may be covered?

  • Registered Nurse (RN)
  • Licensed Practical Nurse (LPN)
  • Certified Nursing Assistant (CNA)
  • Home Health Aide (HHA)
  • Non-professional caregiver

Who is eligible?

The caregiver must be a US citizen or permanent resident of the United States for at least six months with evidence of residency, and be willing to undergo a financial evaluation of need to determine if they fall within the program’s financial eligibility guidelines. Additionally, the patient for whom care is being provided must have a confirmed rare disease diagnosis.

How do you apply?

Awards are granted on a first come, first served basis to eligible individuals. There is no fee to apply. Contact a Patient Services Representative at 203.616.4328 or email [email protected].

Read stories from grantees

Leah’s story

Debra’s story

Beth’s story


Support this program and make a positive impact on families throughout the rare community. Contact us at [email protected] to make a donation to sustain the Rare Caregiver Respite Program.