NORD’s voice is strongest when we all work together! We rely on patients to educate their representatives and to advocate in their local communities. The best way to do this is to join the Rare Action Network™. Members of the Rare Action Network ™ are part of 30+ million person community working towards improving the lives of patients with rare diseases.
Sign-up here (LINK TO FORM) to receive updates about policy initiatives and opportunities to take action at the state and Federal level.