Nov. 10, 2021
Posted by Valaree DonFrancesco
On the show today, Kam Redlawsk is a designer, illustrator, writer, and disability advocate. After five years of being consistently misdiagnosed and not taken seriously, she was diagnosed correctly with a condition called GNE Myopathy, which is a very, very rare degenerative muscle wasting disorder. There’s so much to unpack about her that can only be explained by hearing her story and understanding the journey she’s undertaken. I’m not too fond of cat poster slogans, but she does make lemonade from her lemons. She has an extraordinary story, has written incredible pieces, and her Instagram will blow your mind. Kam is the very definition of what it means to be an advocate; when no one expects to become one, and they’re thrust into the world of rare disease. And now she’s giving back and inspiring hundreds of thousands of people. Enjoy the show.
For more information about Kam, visit https://www.kamredlawsk.com.
NORDpod is the official podcast of the National Organization for Rare Disorders. More at https://rarediseases.org.