Latinos & Rare Diseases
The National Organization for Rare Disorders (NORD) is hosting in-person listening sessions for Latinos affected by rare diseases. NORD has been a leader in rare disease patient advocacy for 40 years and is guided by our belief that every person living with a rare disease has the right to their best possible health and well- being.
Through our listening session programming, we aim to listen to the experiences of Latino patients, families, and caregivers impacted by rare disease to better understand their experiences with barriers to care, diagnosis, and therapies. Our learnings from this programming help us raise awareness about the challenges faced by this community, and they inform the development of resources, programs, and support services to improve access to care and quality of life for Latinos impacted by rare diseases in the United States.
If you are interested in attending our upcoming listening sessions in Los Angeles, California, please fill out the form below. Personal information such as your name and phone number will be kept confidential and will not be shared with third parties.
