The mission of CLOVES Syndrome Community (CSC) is to support, educate, empower and improve the lives of those affected by CLOVES syndrome. Its vision is to have an improved quality of life for people with CLOVES syndrome.
1.) What does it mean to you personally to be a patient organization serving the rare community?
2.) What do you find your patient community values most from your organization?
3.) What are some of the challenges your organization has faced?
4.) What has been your most successful awareness campaign and/or fundraising event?
PO Box 406
West Kennebunk, ME 04094