For 41 years, as a nonpartisan nonprofit organization, the National Organization for Rare Disorders (NORD) has collaborated with administrations and policymakers at every level to address the urgent needs of the rare disease community.
We remain committed to working with all newly-elected officials, urging them to recognize rare disease as a critical public health priority and enact policies that can best meet our community’s complex needs.
Our motto continues to be true: Alone we are rare. Together we are strong.
Pamela Gavin
Chief Executive Officer
