June 26, 2020
TOPIC: Featured News
NORD Issues Statement on Recently Introduced “Promising Pathway Act”
Posted by Laura Mullen
NORD is deeply concerned about the “Promising Pathway Act” recently introduced in both the Senate and the House. Contrary to the stated goal of giving patients with serious and life-threatening diseases a “chance at receiving meaningful treatments,” this legislation, by its own terms, would lower FDA’s approval standards, exposing patients to unsafe and ineffective medicines. Rare disease patients deserve… Read More
