TOPIC: Featured News
2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary. For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate. Our policy, research and other efforts have played a significant role over the years, advocating for what matters most… Read More
TOPIC: Advocacy, Featured News
*The following article ran 6/19/2018 via Pennsylvania Legislative Services, an online legislative research, tracking, media, and analysis service providing access to Pennsylvania’s policy making process.
SUPPORTERS, LAWMAKERS CELEBRATE RARE DISEASE AWARENESS DAY
By Derek Snyder, Pennsylvania Legislative Services | June 19, 2018
Dozens of advocates joined in the Capitol this morning to support PA National… Read More
TOPIC: Advocacy, Featured News
Washington, D.C., June 15, 2018—On Wednesday, staff from the National Organization for Rare Disorders (NORD) met with Health and Human Services (HHS) Secretary Alex Azar to discuss the needs of rare disease patients. The meeting covered orphan drug innovation, growing patient involvement at the Food and Drug Administration (FDA), and the mounting challenges of access to quality insurance… Read More
TOPIC: Advocacy, Featured News, Medical
TOPIC: Events, Get Involved
On Thursday, May 17 at the Andrew W. Mellon Auditorium in Washington, D.C. the rare disease community came together to celebrate NORD’s 35th Anniversary and to recognize the amazing accomplishments of the 2018 honorees during NORD’s 35th Anniversary Celebration presenting the Rare Impact Awards.
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