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December 1, 2014

TOPIC: Featured News, Industry, Patients & Members

NORD Celebration Highlights the Courage of Children and Adults Living with Rare Diseases

Posted by Mary Dunkle
Portraits of Courage


The National Organization for Rare Disorders (NORD) focused a spotlight on individuals and families who display great courage as they live with rare diseases at its Portraits of Courage Celebration last night.


November 5, 2014

TOPIC: Advocacy, Featured News, Patients & Members, Research

Multiple Endocrine Neoplasia Type 1: One Family’s Fight

Posted by Samantha Scheer

Vanessa Devore’s father, Octavio Armenta was never diagnosed, and neither was her grandfather. Hailing from Guadalajara, Mexico, she represents a legacy of fighters against an unknown disease, as the pioneer… Read More

October 7, 2014

TOPIC: Advocacy, Featured News, Medical, Patients & Members, Research

Taking Action for ACD

Posted by Samantha Scheer

On February 20th, 2013, Eliza and John Rista of Huntersville, North Carolina were blessed with an uncomplicated pregnancy, and a healthy, full-term baby boy weighing 8 pounds and 6 ounces. “Around midnight on the day of my son’s birth, my husband and… Read More