Jun. 17, 2021
Posted by Valaree DonFrancesco
Washington, DC, June 17, 2021—The following statement was issued by Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD) regarding today’s US Supreme Court decision in California v. Texas:
“Today’s ruling is a triumph for all patients with a rare disorder and their loved ones,” said Mr. Saltonstall. “Prior to the passage of the Affordable Care Act (ACA), patients with rare disorders faced discrimination, could be denied health insurance for having a pre-existing condition, and many lacked access to affordable health coverage that met their complex medical needs. Today’s decision is the culmination of years of advocacy by the rare community and it will ensure that our patients will remain protected.
More work needs to be done to ensure that patients everywhere are able to access affordable and comprehensive health insurance. As the voice of the over 25 million Americans living with a rare disease, NORD is eager to work with lawmakers on both sides of the aisle to build on ways to improve the ACA and find new policy solutions to address the high cost of health care to ensure all rare disease patients have access to the care and treatments they need.”
Peter L. Saltonstall
President and CEO, National Organization for Rare Disorders (NORD)