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Sep. 15, 2015

TOPIC: Featured News

NORD Named Charity of the Week By The Week Magazine

Posted by Jennifer Huron

The WeekThis past week, the National Organization for Rare Disorders (NORD) was named “charity of the week” by The Week magazine. Each charity featured in The Week has earned a four-star rating from Charity Navigator, which rates non-profits on the strength of their finances, control of development and administrative finances, and transparency of their operations. Four stars is the highest rating that Charity Navigator provides.

The Week recognized NORD for its work to identify, treat and help advance cures for medical conditions that often receive too little attention or research funding.  The Week highlighted NORD’s patient assistance programs, which began in the 1980s to help patients with rare and chronic diseases access treatments and clinical trials they could not otherwise  afford, its research grant program, and work to collaborate with patient organizations and companies working to create products for rare disease patients.

To read the feature, check out Page 33 of the September 11, 2015 issue.  Thank you to The Week for this tremendous recognition of our work!


2 Responses to “NORD Named Charity of the Week By The Week Magazine”

  1. Sandra armes says:

    my son-in-law has grilling bureau, always worked hard, he is at point where his condition has worsened, drop foot worse, toes are starting to curl&the 1 foot turning in, he can no longer support his wiife&2 little girls, new baby be here about 2 months, he is a man with pride and they had to sign up for welfare, $501 a month! their rent is $500+ellectric, small townhouse, have to put baby in room with them, my daughter has PCOS 7 months pregnant, tumors, they call string of pearls I believe on her ovaries which makes her highly susceptible to ovarian cancer, please, I am begging you, can anywhere help them financially, please!!!#

  2. Linda Hodge says:

    I had emergency surgery in 2009 and 90% of my stomach was removed. I have to take B12 shots now because that’s the only way my body will absorb it. My insurance will not pay for this prescription and I was referred to you for help. My only income is social security and I can’t afford the shots.