Parent to Parent USA
Center for Information and Study on Clinical Research Participation
International Alliance of Patients’ Organizations
National Ophthalmic Disease Genotyping and Phenotyping Network (eyeGENE®)
LGMD2I Research Fund
Global FKRP Registry
Alex TLC (The Leukodystrophy Charity)
PANDAS Network.org
PVNH Support & Awareness
Genetic Disease Foundation
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