1p36 Deletion Support & Awareness

906 NE Greenwood Ave.
Bend, OR

About 1p36 Deletion Support & Awareness

The 1p36 Deletion Support & Awareness is a voluntary, non-profit organization whose mission is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. They do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community. 1p36 deletion syndrome is a chromosome disorder whose symptoms include moderate to severe intellectual disability, delayed growth, limited speech ability and distinct facial features. Affected individuals usually have weak muscle tone and swallowing difficulties. Seizures occur in more than half of individuals with this disorder.