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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Accord Alliance


Address

531 Route 22 East #244
Whitehouse Station, NJ 08889 USA

Phone

(908) 349-0534

Fax

(801) 349-0534

Description

The Accord Alliance (AA) is a voluntary organization whose mission is to promote comprehensive and integrated approaches to healthcare that enhance the health and well-being of people and families affected by disorders of sex development (DSD) by fostering collaboration among all stakeholders. Accord Alliance provides a web-based clearinghouse of educational and informational resources to meet diverse stakeholder information needs and support the healthcare decision-making processes of providers, patients, parents, payers, and researchers working to improve health care for DSD. They are establishing collaborative relationships with emerging interdisciplinary DSD teams and developing a transferable model of care, clinical guidelines and protocols, and decision aids to support providers in their efforts to deliver culturally competent, patient-centered care that engages the patient and family in understanding DSD and managing healthcare and social support services. Accord Alliance encourages rapid identification and sharing of lessons learned and best-practice approaches across their collaborative teams and other emerging teams by supporting symposiums, webinars and other means of information sharing. DSD, also commonly referred to as "intersex", is a grouping of congenital conditions in which development of chromosomal, gonadal, or anatomic sex is atypical.

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