Advocacy for Neuroacanthocytosis Patients

Advocacy for Neuroacanthocytosis Patients (NA Advocacy) exists to support patients, families, and carers affected by neuroacanthocytosis (NA) syndromes, rare neurodegenerative conditions covering VPS13A disease (also known as chorea-acanthocytosis) and XK disease (also known as McLeod syndrome).

We work to:
* shorten the time to correct diagnosis by raising awareness and fund free (to patients) diagnostic tools
* provide support to those navigating life with these conditions
* fund research that brings us closer to understanding, treating, and ultimately curing NA syndromes.

Facebook: www.facebook.com/Neuroacanthocytosis/
LinkedIn: www.linkedin.com/company/advocacy-for-neuroacanthocytosis-patients/
Instagram: @na_advocacy
BlueSky: @na-advocacy.bsky.social
YouTube: https://www.youtube.com/@AdvocacyforNeuroacanthocytosis