The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Office of Communications and Knowledge Transfer
540 Gaither Road
Rockville, MD 20850
The Agency for Healthcare Research and Quality (AHRQ) catalogues the impact the Agency's research and resources have on outcomes, quality, cost, use, and access. They demonstrate how AHRQ-funded research, tools, and products are actually being used by Federal and State Government; individual practices, clinics, and hospitals; insurance companies; professional associations; and schools of public health and medicine. Managed by the Office of Communications and Knowledge Transfer (OCKT), the program objective is to track the impact of AHRQ research and resources and explain that impact in ways policymakers and others can both understand and appreciate.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.