APDS Rare Disease Coalition

The APDS Rare Disease Coalition is a patient-led organization dedicated to raising awareness, advancing research, and improving access to diagnosis and treatment for individuals affected by Activated PI3K Delta Syndrome (APDS). Through advocacy, education, and community support, we work to empower patients and families, promote early genetic screening, and collaborate with healthcare providers and policymakers to improve outcomes and quality of life for those impacted by APDS.