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Association For Bladder Exstrophy Community


204 37th Avenue North
Suite 157
Saint Petersburg, FL 33704 USA



800 Number


Email Address

[email protected]


The mission of the Association for Bladder Exstrophy Community (ABEC) is to facilitate mutual support for persons affected by bladder exstrophy, epispadias and cloacal exstrophy including parents of children with bladder exstrophy, adults, healthcare professionals and others interested in exstrophy. The organization provides a newsletter, literature, information and referrals, an informal pen pal program, conferences, advocacy, and a directory of members. There is also an informal e-mail exchange for children.

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