Association For Bladder Exstrophy Community

The mission of the Association for Bladder Exstrophy Community (ABEC) is to facilitate mutual support for persons affected by bladder exstrophy, epispadias and cloacal exstrophy including parents of children with bladder exstrophy, adults, healthcare professionals and others interested in exstrophy. The organization provides a newsletter, literature, information and referrals, an informal pen pal program, conferences, advocacy, and a directory of members. There is also an informal e-mail exchange for children.