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Association Fransaise Contre l’amylose


Address

66 rue Saint Jacques
13796 Aix en Provence cedex 3
13006 Marseille France

Phone

04.91.81.17.16

Fax

442949087

Email Address

assoc_amylose@yahoo.fr

Description

The Association Fransaise Contre l'amylose (AFCI) is a voluntary, non-profit, self-help organization that was established in 1994 in France in memory of Paulette, who was affected by a hereditary form of amyloidosis. Amyloidosis is a chronic disorder in which an abnormal starch-like protein complex (amyloid) accumulates in certain tissues and organs of the body. Amyloidosis may occur as a primary disorder for unknown reasons (idiopathic) or may occur secondary to other underlying disorders such as rheumatoid arthritis, familial Mediterranean fever, cancer of the bone marrow (i.e., multiple myeloma), or tuberculosis. In addition, some forms of amyloidosis may be inherited. The specific symptoms and findings vary greatly in range and severity, depending upon which areas of the body are affected. The association is dedicated to promoting and supporting medical research in the fight against amyloidosis; furthering the knowledge of affected individuals, family members, and healthcare professionals; working in association with other related organizations; and providing networking opportunities to individuals with amyloidosis and family members. It also provides appropriate referrals to genetic counseling and engages in patient advocacy.

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