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Associazione Internazionale Ring 14


Address

Via Lusenti 1-1
42121 Reggio Emilia, 42100 Italy

Phone

39 0522 421037

Fax

39 348 9500941

Email Address

info@ring14.org

Description

The Associazione Internazionale Ring 14 (AIR) was established in 2002 to identify and connect families with children affected by ring 14 syndrome in order to provide support; promote social, political and scientific activity for diagnosis and research of therapy; and raise funds to promote research and scholarships. Associazione Ring 14 is working to establish the first medical and scientific "Data Bank" on this syndrome; design a protocol of medical survey for Ring 14 syndrome patients to investigate the correlation between clinical manifestations and molecular genetic changes; and create a network of consultants including doctors, scientists, and healthcare workers.

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