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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Atypical HUS Foundation



Address

1701 Fairfax Circle
Barnhart, MO 63012 USA

Email Address

ahusfoundation@gmail.com

Description

We've been there.
We've spent the evenings in hospitals, we've worried and braced ourselves for the worst. We've become students of the invisible processes in our bodies. We've felt the physical relief of meeting others in our situation, and we've been carried by their optimism, wisdom, and encouragement.
So we do the same for others, who are now where we've been. We are advocates in medical and pharmaceutical circles. We help doctors understand and respond to our disorder. We champion continued investment in research and therapies that improve the quality of life for every aHUS patient.
Simply put- atypical support is in our blood.


Facebook: https://www.facebook.com/TheAtypicalHUSFoundation/
Twitter Handle: @AtypicalHUS

 

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