To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Beckwith-Wiedemann Children’s Foundation International


9031 Cascadia Ave
Everett, WA 98208





Email Address

[email protected]


The Beckwith-Wiedemann Children's Foundation International (BWCFI) is a non-profit, voluntary organization run by family members of children affected by Beckwith-Wiedemann syndrome (BWS). This is a rare genetic disorder characterized by a wide spectrum of symptoms and findings that vary from case to case. In many affected individuals, findings associated with the syndrome include above-average weight and length at birth or increased growth after birth, an unusually large tongue, enlargement of certain abdominal organs, and/or abdominal wall defects. BWCFI's mission is to provide assistance to those affected by Beckwith-Weidemann syndrome though education, conferences, and a telephone support line. BWCFI offers assistance with insurance claims and travel to medical facilities for treatment.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.