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9031 Cascadia Ave
Everett, WA 98208
The Beckwith-Wiedemann Children's Foundation International (BWCFI) is a non-profit, voluntary organization run by family members of children affected by Beckwith-Wiedemann syndrome (BWS). This is a rare genetic disorder characterized by a wide spectrum of symptoms and findings that vary from case to case. In many affected individuals, findings associated with the syndrome include above-average weight and length at birth or increased growth after birth, an unusually large tongue, enlargement of certain abdominal organs, and/or abdominal wall defects. BWCFI's mission is to provide assistance to those affected by Beckwith-Weidemann syndrome though education, conferences, and a telephone support line. BWCFI offers assistance with insurance claims and travel to medical facilities for treatment.
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