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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Benign Essential Blepharospasm Research Foundation, Inc.


Address

PO Box 12468
Beaumont, TX 77726-2468

Phone

4098320788

Fax

4098320890

Email Address

bebrf@blepharospasm.org

Description

The Benign Essential Blepharospasm Research Foundation (BEBRF) is a 501 (c)(3) national, voluntary health organization that was formed to promote research into the cause, treatment, and potential cure of benign essential blepharospasm (BEB) and other disorders of the facial musculature. BEB is characterized by intermittent, involuntary contractions or spasms of the muscles around the eyes. In some cases, an inability to open the eyelids due to involuntary muscle spasms may result in functional blindness. Established in 1981, BEBRF provides encouragement to affected individuals and their families through state coordinators and local support groups. District directors coordinate activities in their regions and direct affected individuals to medical centers where these conditions are treated. BEBRF also acts as a clearinghouse for information on BEB, Meige's syndrome, and hemifacial spasm and distributes materials including brochures, bimonthly newsletters, and physician reprint articles.

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