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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Canadian Hemophilia Society


Address

301-666 Sherbrooke Street West
Montreal, QC H3A 1E7 Canada

Phone

5148480503

Fax

5148489661

800 Number

8006682686

Email Address

chs@hemophilia.ca

Description

The Canadian Hemophilia Society (CHS) is a registered charity dedicated to improving the quality of life for all persons with hemophilia and other inherited bleeding disorders. CHS was established in 1953. Its goals and objectives are to assure that all persons with hemophilia have ready access to the highest possible level of care; assure that the hemophilia community and public are kept informed; that research will continue to improve care and seek a cure for hemophilia, and to assist persons with hemophilia living in third world countries to ensure that they receive appropriate care. CHS works in collaboration with the Network of Rare Blood Disorder Organizations (NRBDO), a coalition of national patient groups, formed to share the best practices in health care delivery for people with hemophilia and other rare blood disorders. Hemophilia is a rare inherited blood clotting (coagulation) disorder caused by inactive or deficient blood proteins (usually factor VIII). Factor VIII is one of several proteins that enable the blood to clot. Hemophilia may be classified as mild, moderate, or severe. The level of severity is determined by the percentage of active clotting factor in the blood (normal percentage ranges from 50 to 150 percent).

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