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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Carcinoid Cancer Foundation

The Carcinoid Cancer Foundation, Inc.
118 North Bedford Road, Suite 100
Mount Kisco, NY 10549





800 Number


Email Address

[email protected]


The Carcinoid Cancer Foundation (CCF) is a non-profit organization dedicated to encouraging and supporting research and education concerning carcinoid tumors and carcinoid syndrome. A carcinoid tumor is a rare, slow-growing form of cancer characterized by overgrowth of certain cells that secrete serotonin, a naturally occurring derivative of the amino acid tryptophan. Serotonin has many functions including regulating activity of the intestinal tract. In some cases, individuals with carcinoid tumors may experience abnormally increased secretion of serotonin, resulting in carcinoid syndrome. In individuals with carcinoid syndrome, associated symptoms may include intense flushing of the face and upper body, wheezing, weight loss, severe diarrhea, and, in some cases, ulcer-like symptoms and/or eventual heart failure. The Carcinoid Cancer Foundation was established in 1968 to support research that will improve the understanding, diagnosis, and treatment of carcinoid tumor and carcinoid syndrome. It also provides understandable information to affected individuals and family members, engages in professional education, and offers networking services to affected families.

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