To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z


The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.

Carol Ann Foundation


8164 W. Circulo De Los Morteros
Tucson, AZ 85743 USA





Email Address

[email protected]


The Carol Ann Foundation (CAF) is a non-profit, voluntary organization dedicated to seeking out people who have Morquio syndrome in order to provide a mutual aid network, act as advocate between patients and their physicians, compile medical information into a database, and pursue funding for education, families, and research. Morquio syndrome (MPS IV) is a mucopolysaccharide storage disease that occurs in two forms, type A and type B. Both forms result in the accumulation in the body and brain of large amounts of a substance called mucopolysaccharide as a result of enzyme deficiencies. The Carol Ann Foundation provides patient networking, education, support groups, and genetic counseling services.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.