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Carol Ann Foundation


Address

8164 W. Circulo De Los Morteros
Tucson, AZ 85743 USA

Phone

5207442531

Fax

5207442535

Email Address

mbs85705@yahoo.com

Description

The Carol Ann Foundation (CAF) is a non-profit, voluntary organization dedicated to seeking out people who have Morquio syndrome in order to provide a mutual aid network, act as advocate between patients and their physicians, compile medical information into a database, and pursue funding for education, families, and research. Morquio syndrome (MPS IV) is a mucopolysaccharide storage disease that occurs in two forms, type A and type B. Both forms result in the accumulation in the body and brain of large amounts of a substance called mucopolysaccharide as a result of enzyme deficiencies. The Carol Ann Foundation provides patient networking, education, support groups, and genetic counseling services.

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