Carter Centers for Brain Research in Holoprosencephaly and Related Malformations

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Address

Texas Scottish Rite Hospital for Children, Department of Neurology
2222 Welborn Street
Dallas, TX 75219-3993

Phone

2145598411

Fax

2145598383

800 Number

8004211121

Email Address

hpe@tsrh.org

Website

http://www.carterdatabase.org/hpe

Description

The Carter Centers for Brain Research in Holoprosencephaly (CCBRH) represent the most concentrated study of holoprosencephaly in the world. The centers were created to gather, store, organize, analyze and share information about HPE, but most importantly, to help families find hope. Holoprosencephaly (HPE) is a neurological birth defect in which the fetal brain does not grow and divide, as it should during early pregnancy. The effects of this brain malformation can range from mild to severe. Specific chromosomal abnormalities and gene mutations have been identified in some patients and there is evidence that in some families, HPE is inherited.

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