The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Royal North Shore Hospital
NSW, 1590 Australia
The Centre for Genetics Education (CGE), based at Royal North Shore Hospital in Sydney, Australia, is dedicated to providing current and relevant genetics information to individuals and family members affected by genetic conditions and the professionals who work with them. The Centre's educational activities, which include resource production, workshops and training programs, all aim to bring genetics information to the widest audience possible and assist in addressing the impact of the new and developing genetics technologies. CGE’s research programs aim to provide an evidence base for these activities.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.