Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


CHARGE Family Support Group


Address

59 Elmer Road
London, SE6 2HA United Kingdom

Phone

4402082653604

Description

The CHARGE Family Support Group was set up in 1987 when a doctor passed the name of Sheila Draper onto other families with a CHARGE child. Sheila had expressed that she wanted to meet other children like her son, Gregory, and so the Family Support Group was formed. The aim of the group, as Sheila saw it, was for parents to be in contact with each other, either by letter or by telephone, to offer encouragement, support and to share information. She decided that a newsletter would be an efficient way to keep families informed and up to date The first issue was circulated to 10 families in November 1987.

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.