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CHARGE Syndrome Foundation, Inc.


Address

141 Middle Neck Rd
Sand Point, NY 11050 USA

Phone

5166844720

Fax

5168839060

800 Number

8004427604

Email Address

info@chargesyndrome.org

Description

The CHARGE Syndrome Foundation, Inc., is a national, non-profit, voluntary agency that was established in 1993. Its mission is to establish, maintain, and distribute information about CHARGE syndrome and provide support to affected families. The foundation supports the dissemination of information about CHARGE syndrome, supports research into its cause and management, and works with other organizations and institutions to accomplish its mission. In addition, the CHARGE Syndrome Foundation hosts a biennial conference for affected individuals, families, physicians, and other professionals such as educators and therapists.

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