The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Level 1 / 55 King William Road
PO Box 1094
North Adelaide, 5006 S. Australia
The Childhood Cancer Association, Inc. (CCA) is a non-profit organization in Australia that was formed in 1982 by several parents of children with cancer. The association is committed to providing financial, practical, and emotional support to families of children diagnosed with cancer. It promotes and supports pediatric cancer research, conducts self-help and family support group meetings, and offers its Family Service, a program that matches specially trained support workers with affected families upon referral by their specialists or social workers. The association also offers a library of materials on pediatric cancers; provides vocational assistance for adolescents who are or were previously affected by cancer; offers free, short- or long-term accommodations for out-of-town families who have children who are undergoing treatment; and outfits treatment rooms and overnight rooms in several hospitals to enable parents to stay with their children. In addition, the Childhood Cancer Association offers ongoing reimbursement to help families employ home tutors for children who have fallen behind in their school work as a result of missing school for long periods or who have developed learning disabilities due to their illness or treatment. The association also reimburses affected families for expenses that they are unable to afford, such as traveling costs; provides funds for world searches to locate compatible bone marrow donors; and funds vocational advocacy research.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.