Scroll
To Top
0-9 A B C D E F G H I J K L M N O P Q R S T U V W X Y Z

*Important

The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


Children’s Brain Diseases Foundation


Address

350 Parnassus Avenue
Suite 900
San Francisco, CA 94117 USA

Phone

4156653003

Fax

4156653003

Email Address

jrider6022@aol.com

Description

The Children's Brain Diseases Foundation (CBDF) is a national, non-profit organization that raises funds for medical research into the causes and treatments of Batten disease. Batten disease, also known as neuronal ceroid lipofuscinosis, is a rare, progressive, degenerative, neuro metabolic disorder characterized by gradual intellectual deterioration, seizure episodes, progressive motor impairment, and progressive visual impairment. Symptoms may begin in infancy, very early childhood, or late childhood depending on the specific type. There is also an adult form called Kuf's disease. Founded in 1968, the foundation provides information on Batten disease to affected families and their physicians and promotes public understanding of the disease. Research funds are provided to investigators to help maintain the momentum of research on Batten Disease; pursue new scientific opportunities in this area of study; and promote early diagnosis, effective treatment, and prevention of Batten disease. The foundation produces educational brochures including "Help To Keep the Color In a Child's Life: Erase Batten Disease."

Please Note

The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.

NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.