About Children’s Gaucher Research Fund
The Children’s Gaucher Research Fund (CGRF) is a 501(c)(3) non-profit organization that raises money for medical research aimed at finding a cure for Gaucher disease type 2 and type 3. It also provides support to families of affected children and allows families who have lost a child to this disease to participate, in their child’s honor, in fund-raising for medical research. Gaucher disease is a rare, inherited, metabolic disorder in which the body is unable to rid itself of worn-out red and white blood cells so that these cells accumulate in the liver, spleen, bone marrow, and, sometimes, heart and lungs. In Children’s Gaucher disease, more commonly known as types 2 and 3 Gaucher disease, all of the above-mentioned symptoms exist, but the disease is also characterized by certain neurologic symptoms such as ocular motor apraxia, a defect of horizontal eye movements; breathing problems and, sometimes, speech or cognitive delay. Founded in 1999, the Children’s Gaucher Research Fund has approximately 1900 members. It serves families in the United States and Canada.