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The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.


CJD Voice


Description

The CJD Voice is a self-help online support group established in 1997. With approximately 350 members, CJD Voice is aimed at providing information and support to persons dealing with CJD (Creutzfeldt-Jakob disease) in a loved one. Creutzfeldt-Jakob disease is an extremely rare degenerative brain disorder that is considered the human form of mad cow disease. CJD Voice educates the public about CJD and seeks to increase funding for research.

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