The information contained in the Organizational Database (ODB) is provided for informational purposes only. There is no implied endorsement by NORD. NORD does not promote or endorse participation in any specific organization. The information is subject to change without notice. Every effort is made to ensure that the details for each entry are as current as possible.
Green Man Tower First Floor
332B Goswell Road
London, EC1V 7LQ United Kingdom
The Cleft Lip and Palate Association (CLAPA) is a registered charity in the United Kingdom and is dedicated to providing information, resources, and support to individuals affected by cleft lip and/or cleft palate, their families, and caregivers. Cleft lip and palate are common malformations that are present at birth (congenital). A cleft is an incomplete closure of the roof of the mouth (palate), lip, or both. These birth defects occur when the pair of long bones that form the upper jaw (maxillae) do not fuse properly during the early development of the embryo. The cleft may be barely noticeable or result in severe deformities requiring surgical correction. CLAPA was established in 1979 and currently consists of 45 chapters operating throughout the United Kingdom. The purpose was to forge a partnership between parents and health professionals. Today, CLAPA's mission has evolved to include organizing local parent support groups; operating a specialist service for parents and health professionals who require help in feeding infants with cleft lip and palate; encouraging and supporting research into causes and treatment; representing the interests of patients by helping to influence national health policy; conducting educational seminars for healthcare professionals and the general public; raising funds for specific treatment and equipment; and raising public awareness of cleft lip and palate through a wide range of informational materials.
The National Organization for Rare Disorders (NORD) web site, its databases, and the contents thereof are copyrighted by NORD. No part of the NORD web site, databases, or the contents may be copied in any way, including but not limited to the following: electronically downloading, storing in a retrieval system, or redistributing for any commercial purposes without the express written permission of NORD. Permission is hereby granted to print one hard copy of the information on an individual disease for your personal use, provided that such content is in no way modified, and the credit for the source (NORD) and NORD’s copyright notice are included on the printed copy. Any other electronic reproduction or other printed versions is strictly prohibited.
NORD's Rare Disease Information Database is copyrighted and may not be published without the written consent of NORD.